I, unfortunately, have not kept great record of my life from my first Remicade infusion. Which I realize now was a mistake. The last time I saw my doctor she was asking me questions that I unfortunately didn't know the answers to as well. I believe I started my Remicade in late August (could have been a few weeks earlier or later). Shortly after that I started experiencing joint stiffness and mild pain. It was annoying, and made parts of my yoga workouts difficult, but that was pretty much it. It was bad enough in my shoulder that I considered going to a doctor in late October. I'm sure I had another infusion after that, but I don't have a for sure date or any kind of record of the pain, unfortunately. The day after Christmas is when it became a real problem. I could barely move, I was so stiff, and in terrible pain. The 27th of December I had an infusion. The day after my infusion my joint pain was gone. I totally thought that the Remicade had helped it and that I had been wrong all along about
it causing it. But less than a week later my joint pain started to return. It started with the stiffness. Then the more severe pain at night. Then about
a week and a half ago, less than a month after my infusion, the pain had fully returned. It's to the point where it's hard for me to do my job. I have difficulty getting dressed. If I sit for an extended period of time it takes me a ridiculously long period of time to get up, and I can't straighten my legs to walk. Sometimes I can't bend my arms to touch my face, depending on how bad the pain is. It's terrible. I mean, I can handle pain. I have this disease, right? I just feel like this is ridiculous and unacceptable and my doctor should be doing more for me or paying more attention to this. Right now, I just want to get some answers on my own and call her and tell her what I want done. I'm just not sure of what that is. I'm thinking I'd like to switch to Humira, if that would help, but I don't know if it would.
Do antibodies cause joint pain? I'm definitely going to ask if I can have the test done to determine if I have built up antibodies. Thank you so much for your reply, Ides. Figuring this out and what to do about
it means so much to me and my life right now. I am so appreciative that you took the time to reply!