Question about Crohns

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New Member

Date Joined Dec 2007
Total Posts : 12
   Posted 1/26/2008 7:44 PM (GMT -7)   
Quick question thanks in advance to any who can provide some help, suffering from Crohns Disease I know there are alot of things they recommend that we do not eat or drink, as for the drinking what would be the best thing to drink without aggravating my crohns  I know they say water is good, but I have heard people say it is really not a great idea as it can cause issues for you.  Any help would be greatly appreciated.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 1/26/2008 7:50 PM (GMT -7)   
You definitely should be drinking lots of water!

Lady G
Regular Member

Date Joined Sep 2006
Total Posts : 321
   Posted 1/26/2008 7:51 PM (GMT -7)   
One of the answers I know you will get is Trial and Error. Unfortunately with Crohns not everyone is the same so no definate answer is really there. Basically some of us can drink milk, some can't, some can drink soda, some can't, some juice, some can't...same with foods too. Some people can eat foods that others can't tolerate at all with this disease. In reality you just have to try different things, see your reactions and see what makes you comfortable, but yes, there are recommendations, I'm sure the others can list some off, but I just wanted to warn that not everyone is the same so you really do have to try whats best for you. Of course sodas/coffee have caffeine and acids that are bad....juices also have acids that can hurt, so non acid juices are usually best to try...milk is hit and miss with the lactose and Crohns.
26 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Taking Entocort.  Possible Fistula.

Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 1/26/2008 9:21 PM (GMT -7)   
I can't have coffee in the morning, but later in the day one cup or two is fine. Milk doesn't bother me, as long as its only six or eight ounces at a time. Carbonated beverages are fine, so long as its only one at a time. But NO diet soda, that tears me apart. It took alot of paying attention to figure out what works for me, and I still pay attention because I figure that with this disease it could all change suddenly!
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 33f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bowel resection 9/07, healing well and feeling well. Entocort 9mg.

Regular Member

Date Joined Oct 2007
Total Posts : 235
   Posted 1/26/2008 11:24 PM (GMT -7)   
My GI said that in his experience, most crohnies don't do well with *insoluble* fiber, citrus fruits, fruits in general, fibrous vegetables, caffeine, and sometimes dairy. He did also say that a Soluble fiber supplement (like any psyllium based powders like Metamucil) are of great help to people that have *any* gastrointestinal problem: UC, CD, IBS, they are all benefited by taking insoluble fiber daily. I started taking three heaping tablespoons of Metamucil twice daily about three years ago. It has *really* helped alot. Not like remission or anything, but overall improvement. It has made the cramps not nearly as bad as they were before I started the metamucil. He even recommended taking metamucil anytime you have gastroenteritis (typically a virus or bacteria causing the big D).
Just trying to be a "Regular Member".
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/27/2008 3:14 AM (GMT -7)   
Drink plenty of water.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Regular Member

Date Joined Dec 2007
Total Posts : 47
   Posted 1/27/2008 5:49 AM (GMT -7)   
Hi Joshuaam82,
First off, I second the comments here about everyone being different. I just started the Makers Diet, so my drinks have changed a bit recently. Basically in Phase 1, I'm limiting my self to water. But...before I started the md, I seemed to tolerate Gatorade very well. Hot tea with milk and sugar sat quite well with me too. Small amounts of milk were ok (on cereal or something), but not big glasses full. In general, alcohol was a no no for me. I treated myself to a soda every now and then, but had to watch that as well. Coca Cola and ginger ale all sat well with me. Fruit juices were ok, again, in small quantities. I've found that drinking water is very important. As a rule of thumb, if my pee isn't clear or a very light color, I'm probably not drinking enough water.
hope this helps.
-Male, age 31
-Diagnosed with Crohn's 2002 - 5 surgeries for peri-rectal abscess in 2002-2003
-Started Makers Diet 26 Jan 08
-currently on prednisone taper after landing myself in the ER with a partial obstruction

Regular Member

Date Joined Jan 2008
Total Posts : 27
   Posted 1/27/2008 6:45 AM (GMT -7)   
After recently being diagnosed and having NO IDEA what triggers pain, I started a journal. Noting everything from type of BM, time of meds, type of meds, cups of water, and how I "feel" for each of these. If I notice some cramping I even list where it hurts. I fugure anything that I can look back on a say "AH-HA!" is great.

Good Luck!

Veteran Member

Date Joined Nov 2007
Total Posts : 4363
   Posted 1/27/2008 12:24 PM (GMT -7)   
If drinking water is a problem, then we are all doomed!!! :)
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares

Veteran Member

Date Joined Jan 2007
Total Posts : 656
   Posted 1/27/2008 2:04 PM (GMT -7)   
I find it really hard to determine what triggers problems, since my system seems to work in cycles, independent of what I eat. However, ever since I was diagnosed 8 years ago, I've avoided the things that experts say are guaranteed to irritate your digestive tract--and therefore perhaps prompt inflammation: seeds, nuts, popcorn, tomatoes, skins of raw fruits, raw veggies. Because of the medications I'm on, I don't drink any alcohol at all, and I try very hard to avoid caffeine and sorbitol. I don't know whether that all works for me, since I have still plenty of symptoms, but I'm wary of doing anything that will irritate my system and make additional trouble.

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 1/27/2008 4:21 PM (GMT -7)   
Drinking too much water, espescially when having D or not able to eat much can be a problem as your electrolites can get way out of balance and it can cause all kinds of problems. A little soda, gatoraid, or salt on your food usually prevents this but when people cant eat or drink other things and are losing a lot of water it can be a problem.
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