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New Member

Date Joined Dec 2004
Total Posts : 4
   Posted 1/27/2008 1:54 PM (GMT -7)   
Hi everyone.  I joined this community awhile ago but have not been on here hardly because of being in the hospital and than not having a computer.  I was not sure if I introduced myself and if I had it would have been awhile ago so I figured there was probably new people on here and othere who had been here awhile would not know me anyways. 
I am a 30 year old female with Crohns disease.  I was diagnosed in 1996.  That was a scarey time for me becauseI knew nothing about this disease and had to learn all I could.  I still do not know everything about crohns but keep learning.  I have had quite a bit of surgeries and complications. 
I currently have a fistula on my abdomen due to a surgery for a stricture in September of 2007.  The surgeon knicked the bowel and could not surgically repair it and thought it would be closed up by now.  I can not lwave the house due to the fistula draining too much.  He is going to go back in and do another surgery in March.  I do not get upset about the surgeries just hate the waiting for this to close up.  I spent 10 weeks the last time I had surgery in September and developed jaundice from blood transfusions and than kept getting staph infections from the Iv in my chest and arm.  The one time I got a staph infection itmoved to my lungs and I was placed on a breathing tube for two weeks.  I do nto remember  the two weeks much because they had me sedated most of the time. 
It was a scarey time for friends and family.  I had so many people praying for me.  It was truely a miracle I am here and suffered no complications in my lungs.  I also had a total hysterectomy due to enlarged cysts on my ovaries. 
I am now pretty much confined to my house because the fistula drains too much.  I just got the computer and am happy to beable toread posts from people who understand what I am going through. 
I know it seems as if I have been through alot and I have been.  I am sure you all have been through alot too.  I did go through so many feelings and am not perfect.  I have my good days and bad ones too.  I am here to meet others who will support me and to also support me too.  I hope to throw my two cents in and help someone because you all have helped me by reading some of the posts. I hope to become a part of the community.
If you would like to IM me or email me I would like that.  I will alsol look forward to any replys to this post as well as any further postings by you all.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/27/2008 3:43 PM (GMT -7)   
Hi Janet, Welcome to HealingWell!! I am sorry for what you have been through. There are alot of good ppl here. We are all caring and understanding we now what you go through with Crohn's. I hope you start feeling better soon. We are always here for you. Hope to see you around.

Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 1/27/2008 4:20 PM (GMT -7)   
Hi Janet, it's good to see a new name. You sound as though you've been through the wringer. So a big welcome and gentle hugs....

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 1/27/2008 4:56 PM (GMT -7)   
Dear Janet,

Welcome to HealingWell. This is a great site. I look forward to getting to know you better. I can see you have been through so much and I am glad you now have a computer and can come here, meet others and share with the members.
I am sure you will find all the members warm, caring and very helpful.  Each person's disease process takes it's own path so you will hear lots of info on what works and the medications, food plans and lots of encouragement from others.
I am so sorry that you had the misfortunate to have your bowel nicked and you are waiting for surgery.  I hope you have lots of support around you as knowing others care and will help you is important.
Special Hugs to you and Keep posting.

Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 1/27/2008 5:13 PM (GMT -7)   
You might also want to pop into the chat room here from time to time . . . peolpe with all sorts fo conditions go there, but there are quite a few of us Crohnies on there as well.

Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 1/27/2008 5:30 PM (GMT -7)   
I cannot tell you enough how moved I was by your post...what an amazingly strong woman you are, you still remain positive throughout your horrible ordeal. You have inspired and humbled me. Please take care of yourself and know that I am thinking of you and wish you the best.
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 3x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
Lasix as needed for ankle/feet swelling
Self-proclaimed "recluse"  do to CD  ;)

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 1/27/2008 5:49 PM (GMT -7)   
welcome..things will turn around 4 u..if u ever get bored IM me,i am cheap entertainment.

Veteran Member

Date Joined Jan 2003
Total Posts : 6117
   Posted 1/28/2008 2:18 AM (GMT -7)   
hey janet.. try and ask for some help from an ostomy nurse. you should be able to use some ostomy appliances over the fistula and the draiange would be contained, and you could get out and about. or you could wear and abdominal binder with some ABD badages to absorb it. i did this for 4 years before my fistula could be repaired. pain in the butt, but it was worth it.

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 1/28/2008 11:05 PM (GMT -7)   
Hi Janet,
Welcome to Healing Well. This "family" has helped many times , even when I haven't posted. Just reading other people's stories and courage helps me get through my challenges. You are one of those people who have already inspired all who read your post. Please visit us often. Looking forward to chatting with you and knowing you better. I am glad you found us.
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Regular Member

Date Joined Mar 2007
Total Posts : 53
   Posted 1/30/2008 6:16 PM (GMT -7)   
Hi Janet, I tried e-mailing you but it didn't go thru, not sure why , hope this finds you well and my story is almost the same as your's . Randy's right about the ET nurse and using ostomy pouches to contained the bile from your fistulas , although when I had mine the acid would eat through them quite qiuickly , but it worth a shot, can't hurt to try.Good luck Janet
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