Hopefully I'm not beating a dead horse with my joint pain issues here. Sorry if I've had too many posts about
it. But the more I read the more upset I get. So on every Remicade related web-site I've looked at it says to let your doctor know if you have any of the following.... joint pain, swelling of the hands, sore throat, and difficulty swallowing (among others that I haven't experienced)occuring 3-12 days after an infusion. So I told my doctor in OCTOBER that I was having joint pain that I never experienced before, and even went as far as to mention Remicade being the culprit. She didn't seem too concerned, and I went to my next infusion. Where my joint pain was relieved for about
3-5 days. I called again to let the nurse know this. I also tried to emphasize the severity of my joint pain. So, months later, nothing is done. And when I talked to the nurse this morning, she said to me.."when we spoke last week you didn't mention that you thought it was because of Remicade" But I had before! Besides, I'm not the doctor. If Remicade warnings say to call a doctor if you have any of the following symptoms, and i CALL with one of the following symptoms, the doctor should be on top of it! In fact, I have all of the symptoms I mentioned above, which to me is a red flag. I talked to the doctor today, and she's going to talk to someone who deals more with patients taking Remicade. Which is nice and all, but I feel like you shouldn't prescribe a medicine to patients if you don't feel experienced enough to deal with potential side effects!