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New Member

Date Joined Feb 2008
Total Posts : 2
   Posted 2/2/2008 7:26 AM (GMT -7)   

I started having problems with my stomach in late Nov 07, lots of D and a fever for a couple of days.  3-4 days later I started to have stomach cramps which were followed by a feeling of being really full after eating only small amounts.  These symptoms lasted a couple of weeks and then went away.  On Jan 3, 08 I woke up in the middle of the night with SEVERE cramps and D and a little vomiting.  Since that time the bloating feeling has come back.  I went to the Dr. and had CT with dye, Xrays, blood tests, and ultrasound, none of which showed anything. 


Finally last week I had a upper and lower scope.  The upper showed nothing but the lower showed a significant narrowing at the Ileum.  As many poster here stated they could not get the tube through.  A couple of biopsies were taken and I am nervously awaiting the results.  The Dr. does not think it is CD because I do not have D on a regular basis, I think he is leaning towards cancer.  But I notice there are several people on this site that do not have problems with D. Also my bowels have gotten thinner probably due to the blockage


Note I am 41 with no prior gastro problems before the Nov incident.  Also I live in Tokyo.


Please provide your thoughts and insights

Post Edited (Lou66) : 2/2/2008 7:31:43 AM (GMT-7)

Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 2/2/2008 8:11 AM (GMT -7)   
I had pain occassionally off and on for years, always told it was a virus. No diarrhea. Then I was in the the ER after increasingly worse cramps. (I thought it was an ulcer). The CT showed narrowing of the terminal ileum. I ended up with a resection less then a year later. So it's possible to go years with the disease and not know it, and quite possible to not have D. Hang in there, I get through it all by knowing tomorrow will always come!
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 33f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bowel resection 9/07, healing well and feeling well. Entocort 9mg.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 2/2/2008 8:20 AM (GMT -7)   
I have never had D per say in the sense of loose stools, but D can also mean frequent stools. I lean towards constipation, so hang in there until the biopsies come back.

Regular Member

Date Joined Dec 2007
Total Posts : 298
   Posted 2/2/2008 1:22 PM (GMT -7)   
I also have narrowing at the terminal ileum. The doctor was able to get the pediatric scope through I believe, but did not see anything so I had a CT enterograph after the colonscopy. I don't have D and I don't have a problem with constipation, either. I am now officially diagnosed but it came as a total surprise because my bowel habits are normal.
My primary symptoms are right-side abdominal discomfort and fevers. For me it is a high fever (>102F) with chills and night sweats that would last a few days and then go away. When it happens I usually feel worse at night. I had four of those episodes since May 2007, and I was just diagnosed last month. I pointed to the doctor where I feel the discomfort and it was one of those AH HA! moments because he said that is exactly where the terminal ileum is. Up until the past few weeks, I would only feel discomfort when I had the fevers. So, it is possible for Crohn's symptoms to come and go.
Stress makes everything worse... so try to relax till you get those biopsy results back. :)

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 2/3/2008 3:10 AM (GMT -7)   
Oh please don't think of the worst. I had problems off and on for 13 years before an official diagnosis was finally given me of CD. I too had narrowing at the terminal ileum that they caught during an upper scope. Biopsy from the lower scope revealed the CD....but I had only had D once in those entire 13 years. I would instead of episodes of fever and chills, some cramping at times severe, but it would always go away after a few days....therefore everyone tended to think it was all stress, and "in my head" ......My worst "flares" prior to diagnosis was during my second pregnancy but baby was born at 8 lbs and perfect.
My prayers are with you....that you may get the "all clear" .
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Regular Member

Date Joined Oct 2007
Total Posts : 149
   Posted 2/3/2008 9:31 AM (GMT -7)   
Hang in there Lou they will find your problem out. My prayers are with you..
Crohns for 11 years
1 surgery so far
2 times in hospital for blockages
B12 Injections

New Member

Date Joined Feb 2008
Total Posts : 2
   Posted 2/4/2008 3:51 AM (GMT -7)   

I received the biopsy results and they were inconclusive, no crohns or cancer. However, since my terminal ileum was shut so they were unable to see or grab anything in there. My Japanese Dr. is recommending resection of the terminal ileum.

I am really starting to shut down but I am scheduled to fly from Tokyo to Seattle tomorrow where I will be immediately admitted to a hospital.  Hopefully I can make it.  Any suggestions, like should I risk flying?

Also any suggestions on over the counter stuff that might help free me up a little?

Thanks for all of your support!

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 2/4/2008 5:05 AM (GMT -7)   
You need to stay on a liquid diet. Get a doctor's script for something like boost or ensure to take on the plane. ( they may not let you carry it on otherwise.)_

Good luck. This will soon be behind you.

30+ years living with Crohn's.

Regular Member

Date Joined Jun 2007
Total Posts : 93
   Posted 2/4/2008 6:25 AM (GMT -7)   
I agree with the above, try not to eat anything, except for liquids and I'm sure you already thought of getting an aisle seat if it was available.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 2/4/2008 11:46 AM (GMT -7)   
good luck and stay safe on your flight.
I hope you get some answers and the surgery goes well!!!


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...

Veteran Member

Date Joined Apr 2006
Total Posts : 1885
   Posted 2/4/2008 8:06 PM (GMT -7)   
My daughter never gets D but does have narrowing at the terminal ileum.
Daughter (20) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress and needing more fiber but landed in hospital in 3/06 with cramps, vomiting, stricture. Now in remission with Entocort 3 mg (one pill), SCD multivit, yogurt, vit D3 1800IU, 900+ mg calcium, 50 mg B complex vit, 25 mg iron. Off SCD diet but wheat was iffy so back on SCD modified to include potatos and rice.   

Regular Member

Date Joined Oct 2007
Total Posts : 235
   Posted 2/4/2008 9:32 PM (GMT -7)   
Immodium really helps for cramps. Might want to take some along.
Just trying to be a "Regular Member".
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.

Veteran Member

Date Joined Apr 2007
Total Posts : 532
   Posted 2/4/2008 10:01 PM (GMT -7)   
Your ileum can be blocked due to swelling and inflammation, Did the Japanese doc put you on any meds like steroids? You may be able to take meds if crohn's is suspected. A small bowel follow thru can tell about how long the blockage is and the diameter of the lumen most times. Yes, fly and get back here ASAP. Staying on liquids is the best idea. Anyway, glad there is no cancer and keep us informed of the US opinion.
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 2/5/2008 8:01 AM (GMT -7)   
I am so sorry for all you are going thru
PLEASE do let us know asap what the doc's say in the US....I am in Canada
I have constant D with my Crohns........
I also agree with others about fluids especially the boost and ensure....water too
Unfortunately unlike for many others OTC meds or RX for immodium or lomotil do nothing for me as neither does all the opiates I take ........

Thoughts and prayers are with you

Stay with us fo sure and get all the support you need..........LYN

  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
         Mod for Alzheimer's, Anxiety and Panic and Co Mod for Crohns Donate today to keep HW helping others

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