How do YOU cope with the pain

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Regular Member

Date Joined Feb 2007
Total Posts : 90
   Posted 2/3/2008 10:56 AM (GMT -7)   
    For the past 2 weeks the crohn's pain has not stopped,it wakes me up,it prevents me from falling asleep.It prevents me from functioning.Yes I try to get busy with activities that I enjoy such as music reading spending time with my ever supporting hubby and my son.I am sooooo angry frustrated and upset. I am looking for suggestions, anything to help me cope.Yes I've been to the emergency with a letter that my G.I. has prepared for me (because they often don't believe my dx of crohn's AND celiac disease.)They gave me 5 dilaudids and told me to go home.!That's not a solutions.
What do you do that helps you
                 I really hope to hear from you soon
                         thank you

Regular Member

Date Joined Dec 2003
Total Posts : 494
   Posted 2/3/2008 11:04 AM (GMT -7)   
im sorry youre in pain, i know it can be horrible. the only way i get by is with pain meds 24/7. maybe your doc could write you some?
Crohn's Disease Diagnosed 12/24/03 and Bipolar

Im 26 years old, and am currently only taking Levisin, Clidinium and protonix for my CD. I'm off my remicade--nervous. I am on quite the cocktail for my BP however: Geodon, Lamictal, Celexa, Buspar, Wellbutrin and Klonopin.
Im also on lipitor for high cholesterol caused by a prior BP med. im on fentanyl patches for pain also, and i take some meds prn for my allergies, asthma, and migrianes.

Regular Member

Date Joined Feb 2007
Total Posts : 90
   Posted 2/3/2008 11:15 AM (GMT -7)   
Thanks for your reply God! you do have a lot on your plate.I hope that you are doing ok,well at least better than me!
I will make 2 appointments this week one with my G.I. and the other with my G.P. I hesitate in asking for pain meds...I worry that i'll come across as abusive of pain meds

I'm 44 my meds are pentasa 500 mg 5 to 10 a day,modulon,nexium for recurrent duodenitis,gravol as needed,domperidone,etc etc

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 2/3/2008 1:14 PM (GMT -7)   
my GI and PCP were very willing to give me vicadin and it helped a lot. they both said it is too hard on one to be in pain and better to control it. sorry you are going through this. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

Veteran Member

Date Joined May 2003
Total Posts : 2481
   Posted 2/3/2008 3:09 PM (GMT -7)   

The pain... ah yes.

Well, I often had to get down on the floor on all fours and just breathe through it.

Sometimes I'll just rest through it.

Sometimes I'll call the local nurses hotline to see if I should go to emerg.

Sometimes I'll pop extra strength tylenol all day long for days at a time.

Most of the time, I just put up with it, keep my chin up and think that old saying, "Things can always be worse".

What kind of pain meds are there anyway? Anything to make you happy and relaxed too? LOL ;-)

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 2/3/2008 8:16 PM (GMT -7)   
2 words Anne,

Pain Clinic.
Few other docs/clinics speacilize in or understand what we ( & numerous other chronic illness patients ) go through. Good ones tailor their treatments as apply to each individual ( but be careful of phony doctor Feelgoods who are drug pushers.). Bona fides give you total workups.

Best of luck.
Been HERE before..

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 2/3/2008 8:20 PM (GMT -7)   
I second Matthew's advice. I was always in a battle with my doctor about pain medication. But the Pain Clinic has been the best thing. At least it is one less thing I have to worry about, constantly being in pain.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Feb 2007
Total Posts : 734
   Posted 2/3/2008 8:25 PM (GMT -7)   
Tylenol and if I can, Tylenol PM to sleep through it. I'm at the point though, were I agree pain meds are a must for flaring Crohn's patients. We suffer enough without trying to prove to anyone that we are superpersons!

Regular Member

Date Joined Oct 2007
Total Posts : 149
   Posted 2/4/2008 9:15 AM (GMT -7)   
I usually take Tylenol 3's for helps with the pain. Plus it helps with the diarrhea.
Crohns for 11 years
1 surgery so far
2 times in hospital for blockages
B12 Injections

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 2/4/2008 10:30 AM (GMT -7)   
Too bad I accquired an immunity to Coedeine. Tolerance is now so high, I only get relief from the tylenol!
But a real bottlestopper in the past! <GRIN>


Veteran Member

Date Joined Nov 2007
Total Posts : 4363
   Posted 2/4/2008 10:56 AM (GMT -7)   
Crohn's pain is not all the same. Do you know the cause of the pain, i.e. a stricture, fistula, partial blockage, etc? Maybe you need something different in the management of your Crohn's
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares

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