Does anyone know about Interstitial cystitis (aka IC)??

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Regular Member

Date Joined Aug 2007
Total Posts : 65
   Posted 2/5/2008 1:53 PM (GMT -7)   
Does anyone have this problem???

I have been having symptoms of a urinary tract infection for almost a year now, and after no antibiotics seemed to work, I went to a urologist today. (We thought the infection was just stubbron due to my being on Remicade).

Well, they think I have something called Interstitial Cystitis, which is a bladder that is inflamed but the cause is unknown. It is commonly seen in people with autoimmune and bowel disorders (I swear, Crohn's is linked to EVERY health problem I have every had..! >:(. Honestly, I am sitting there thinking "This is like having freaking Crohn's of the bladder...!" The symptoms are not fun, and treatment, like treatment for Crohn's, varies widely in its effectiveness.

Does anyone out there also have this condition? If so, please please tell me what treatment worked for you!!!! Or, just tell me what you have tried!!!

Thanks for any responses. :-) :-)

Regular Member

Date Joined Jul 2005
Total Posts : 141
   Posted 2/5/2008 2:36 PM (GMT -7)   
I was diagnosed with IC about 7 years ago.  I was on Elmiron up until about a year ago then I tapered off and have been doing pretty good since.  I've also been on Atarax and Elavil but didn't notice either to help much.  Let me know if you have any questions, I'd be happy to try to help. 
This board is good for info
24 years old
Crohn's Colitis - officially diagnosed Feb. 2005
(Asacol, Imuran, Folic Acid, Iron, B12 shots)
Interstitial Cystitis - 2002
Raynauds - 2005
(mittens & space heaters, for now) 
GERD & hiatal hernia - July 2007
.::I can do all things through Christ who strengthens me. Phillipians 4:13::.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 2/5/2008 7:18 PM (GMT -7)   
One of my many urological complications. Unfortunately, I think they just gave me a course of anti-biotics las time. This was in early '94 so its been awhile..

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