update on my friend in hospital

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Veteran Member

Date Joined May 2007
Total Posts : 528
   Posted 2/6/2008 10:16 AM (GMT -7)   
just in case any of you are curious... I visited my friend last night. turns out that the Ct showed she has literally dozens of abcesses on the outside of her abdominal wall, on her pelvis. Because she has had multple surgeries, the surgeon can't tell the root of the abcesses from the scan, so they will be doing surgery on thursday to deal with the abcesses and try to find the root. She was in pain but also in good spirits. She recently got married, and I am engaged, so we swapped wedding stories. I brought her a couple of cheesy magazines, a coloring book and crayons, some lip balm and just some small trinkets to keep her occupied when she is bored. she is nervous about the surgery since no one is certain what they will find once they're in there. so, I am keeping my fingers crossed for her. thanks to all of oyu who provided me suggestions on how to cheer her up and visit her in the hospital. I appreciate it.
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 2/6/2008 12:29 PM (GMT -7)   

Hello and I am sorry your friend needs surgery.........please know I will keep her in my prayers.  You are the best and keep on supporting her.  I loved the items you brought.  Nothing like a rag magazine to take your mind off yourself.


Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
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Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 2/6/2008 12:31 PM (GMT -7)   
As nervous as she is about the pending surgery, what a relief to finally have a reason for feeling so lousy.

As far as her having multiple abscesses -- it sure sounds like she may have a pin-hole leak in her bowel that may be releasing minute amounts of feces. Abscesses are the body's way of walling off the infection to try and limit its systemic impacts. If that is what is going on, she may be facing a temporary ileostomy that will allow the bowel time to heal.

With a friend like you to be available for her, no matter what she's facing, life will soon be looking up.

30+ years living with Crohn's.

Regular Member

Date Joined Jul 2006
Total Posts : 330
   Posted 2/6/2008 2:45 PM (GMT -7)   
You're a true friend - and I wish more of us could have one's like you!

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 2/6/2008 3:37 PM (GMT -7)   
Wow, what a great choice of things to bring just hearing coloring book and crayons brought back great memories of my childhood. And talking about shared happy experiences is so much more uplifting than just talking about being sick.
I will be praying for a speedy recovery for your friend.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 2/6/2008 5:21 PM (GMT -7)   
The coloring book and crayons was a great idea. When I had my gallbladder out, my sister brought me a hoola hoop. I've never laughed so much in all my life. Boy did it hurt, but it was worth it. Sometimes childish things are "just right".

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Forum Moderator

Date Joined Feb 2003
Total Posts : 15152
   Posted 2/6/2008 11:38 PM (GMT -7)   
Hey, I love to color. I have my own coloring book & crayons and I have even shared them with my grandbaby. You never get to old to color. I find it relaxing. Susie

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 2/7/2008 3:48 AM (GMT -7)   
Hi, the coloring book is a good idea, I will praying for a speedy recovery for your friend.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Regular Member

Date Joined Oct 2007
Total Posts : 289
   Posted 2/8/2008 6:59 AM (GMT -7)   
Good luck to your friend,how is she??

Regular Member

Date Joined Aug 2007
Total Posts : 79
   Posted 2/9/2008 9:44 AM (GMT -7)   
What a cute idea for the coloring book. Glad you cheered up your friend. I hope her surgery gets to the cause of these abcesses. Ouch. You are a good friend. I was mad at my hubby for bringing me O (Oprah) mag. when I was in the hospital. It was too complex to read when I was feeling cruddy. I wanted US Weekly or something really cheesy. :-)

Veteran Member

Date Joined May 2007
Total Posts : 528
   Posted 2/9/2008 9:58 AM (GMT -7)   
My friend had surgery Thursday. Her husband and I spoke Thursday night. he was operating on no sleep, and I don't totally understand Crohns, so I didn't completely follow everything he said, but this is the gist of what happened. when the surgeons opened her up they found a raging infection in one of her fallopian tubes. her colon had somehow tried to block the infection (this is where I get a bit confused) by wrapping itself around the fallopian tube, so the surgeons had to detach the colon from the tube. in the process, the colon perforated slightly, so she has a temp. ileostomy for at least 6 weeks while the colon heals. the fallopian tube had been destroyed by the infection and had to be removed. obviously this was unanticipated and my friend is quite upset.

the doctors speculate that the infection was actually just the type of general bacterial infection that all of us fight all the time but because of her prolonger remicade (and now humira) treatments, her body couldn't fight it effectively.

I am planning on visiting her tomorrow if she is up for it. I suspect it will be a hard visit, as she really wants kids, and while she still can, the loss of a fallopian tube obviously makes that harder. also, she has had an ilieostomy before and really hated it. it's very sad.
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!

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