Hey I am sorry to hear about your daughters diagnosis. I work at a camp for chronically ill kids in the summer, and two of our sessions are for crohns and ulcerative colitis. I have had many kids diagnosed at a very young age, and I actually had a camper who had her colon taken out when she was 2, and had an ostomy at thaty age. It will be rough, but it sounds like she is well taken care of. It seems odd, but your daughter and I are on the same meds...but I have a few years on her. How much 6-mp and remicade is she on? Best of luck, and if you have any questions don't hesitate to ask!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Remicade every 6 weeks, 6-mp, Nexium (GERD)
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines, GERD
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon