2nd Dose of Humira...

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Regular Member

Date Joined Oct 2007
Total Posts : 235
   Posted 2/7/2008 11:58 AM (GMT -7)   
Monday night, I injected my second dose of Humira (two shots). I've been waiting and waiting for the side effects that I experienced after the first round to hit. I'm very happy to report that the side effects this time have been very mild. The head ache was gone by the following evening, hardly any nausea, and no flu symdrome at all.
Also, I've been noticing that inflammation is starting to decrease in various locations. I take flonase for chronic sinus inflamation (which seems to be very common in chronies). My sinus inflammation has decreased *alot* the last few days. I'm now able to breathe out of both nostrils at once, which is something I can't normally do. Also the arthritis pain in my elbows and knees is starting to ease. My back still hurts, and I still have Crohn's symptoms, but I'm hoping  that the decrease in the other symptoms is a sign that the Humira is starting to take effect. The psoriasis on my back is almost gone, too.
And I've saved the best for last... Beside the GI problems associated with Crohn's, the most bothersome effect of Crohns (for me, at least) has been the terrible fatigue. Today marks day three that I have bounced out of bed, ready to tackle the day, and had great energy reserves *all day long*. That right there is worth the cost of admission to the Humira club for me. Relief from the cramps and D will just be the proverbial icing.
It always seems like good things always come with the bad, though. I recommended my GI to my mother, as she has had some bad symptoms lately, and she is due for her yearly colonoscopy. She's had UC in the past, but after a small resection, it never re-occured. She has also had quite a few polyps removed. Due to her history, her last GI recommended she have a scope done every year. Well, she's let it slip by a year. Last week she had a scope done by my GI. She had a very large polyp removed. Yesterday the biopsy results came back: she has cancer. The doctor said that he is quite sure he removed all of it during the scope, but that she needs to have the entire area resected to be on the safe side. Unfortunately, my mother isn't in the best of health. She is a terrible surgical risk. So of course we're all very concerned for her. Moral of the story: if your GI recommends yearly scopes, then GET YEARLY SCOPES. Since it had only been two years since her last scope, the cancer hadn't had time to get *really* nasty, but it still would have been much more treatable and alot less traumatic if it had been caught even earlier than it was. The doc stated that every one of my Mom's children should get yearly scopes after age 40 now that she has been diagnosed with colon cancer. You can bet I'll be getting it done. I just got scoped in October. Next halloween will find me kicking back with a nice tall shot of phospho soda.
Anyway, just had to get all that out. Thanks for listening. : )

Just trying to be a "Regular Member".
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.

Post Edited (CrohnsDaddy) : 2/7/2008 12:02:30 PM (GMT-7)

Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 2/7/2008 1:10 PM (GMT -7)   
So glad to hear that you are having good results with the Humira treatment! I have also had fantastic results with the Humira, I've been taking it about 5 months now and my quality of life has increased about 75%, which is amazing to me. I do still have to take my Entocort, although I'm down to 6mg daily instead of 9mg. But I feel better than I have in a couple of years.
Yea for us both!
"Difficult things take a long time,
impossible things a little longer. " ~Author Unknown
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 2x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,

Regular Member

Date Joined Mar 2007
Total Posts : 257
   Posted 2/8/2008 6:38 AM (GMT -7)   
CrohnsDaddy -
I am glad to hear the Humira is working for you. I have been on it for about 9 months now and feel it has helped me tremendously. I do think I have more headaches now than ever but nothing I can't deal with. I felt that it really kicked in after 4-5 months. I still have D occasionally but nothing compared to before Humira. I am also on Imuran, 75mg, and hope to decrease that after I go on vacation. I don't want to change anything before vacation as I want to feel good on vacation.
I am sorry to hear about your Mom. I hope everything work out for her and she has a quick recovery. I agree with you about getting the colonoscopy annually. I used to skip years when I was younger but now that I am older I realize it isn't that bad it I want to be around to see my son graduate from high school, go to college, get married and everything else.
I hope the Humira keeps working for you. MB

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 2/8/2008 10:28 AM (GMT -7)   
Hi CrohnsDaddy, see I told you it might not take months.... I just this minute gave my second dose, with my epipen handy, so far so good..
So we're both good to go.....

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

Regular Member

Date Joined Nov 2007
Total Posts : 50
   Posted 2/8/2008 10:53 AM (GMT -7)   
:-)   I too just got my second dose (2 shots) of Humira yesterday.   After my first dose I felt a little tired all weekend, but definatley had more energy.  This time I felt a little worse.  REALLY tired and my stomach bothered me.  I have had bad reactions to Sulpha, Asacol, and Imuran (liver swelled-horrible) so I'm just waiting for something to happen with the Humira.  Keeping my fingers crossed.  Interested to hear others side effects.  Good Luck to your mother!

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 2/8/2008 6:12 PM (GMT -7)   
great news! wishing your mother well.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 2/8/2008 6:51 PM (GMT -7)   
I am so sorry to read about your mother's diagnosis. It does sound like they have caught it quite early which is good. I lost my best friend to colon cancer. She was diagnosed at age 49 with stage 4 CRC. She never had any GI symptoms and that is why it got so advanced. The current recommendation that people with no risk factors start getting colonoscopies at age 50 is too late in my opinion. I think that the EVERYONE should have a screening colonoscopy starting at age 40.

Sorry to get on the soapbox in your thread. I hope all goes well with your mother.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

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