tapered pred and remicade

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Regular Member

Date Joined Jan 2007
Total Posts : 52
   Posted 2/8/2008 8:26 PM (GMT -7)   
been off pred for about two weeks, hoping the two infusions of remicade would kick in but back to regular symptoms, cramping, several BM's, bloating and loss of appetite. I have lost the six pounds i gained on pred, after almost a year.....and am afraid i will go back to that sickly person i used to be.  remicade is costing me too much money for it not to work.. how long before my body will start producing pred like steroids and get back to normal....?
diagnosed in 2006, had crohns for 10 years
area affected illeum, small intestine, 
asacol, prednisone 40mg, Imuran, small bowel resection 2006.  just diagnosed with SLE this year, still waiting to see a rumey.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 2/8/2008 9:25 PM (GMT -7)   
I would not give up on Remicade yet. the reason they set the loading dose schedule as it is, is because trials showed that it the best at producing results. I did not get really good bowel response until after the third infusion. I had a good week following the 2nd infusion and then symptoms returned. Once I had the 3rd infusion, I saw tremendous improvement in my GI symptoms.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 2/9/2008 3:09 AM (GMT -7)   
Hi, I would give the Remicade sometime. I have been on Remicade for almost 5 years and enjoying being in remission. you should see results after your 3 infusion.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

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