Pernicious anemia question ( Bdub are you out there?)

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Regular Member

Date Joined Dec 2007
Total Posts : 102
   Posted 2/10/2008 12:56 PM (GMT -7)   
I hope you don't mind my asking, ( Bdub ) I saw you post a reply in Crohn's forum for auto immune disorder question. I noticed you have pernicious anemia.  I am being tested for pernicious anemia.  How did you get it.  I have crohn's but not in my ileum.  I had H. Pylori probably all my life and was recently treated for it. I guess it can damage the cells in the stomach that produce the stuff you need so your ileum can absorb b12.  I have had symptoms for 2 years and didn't know what it might be.  I hope to find out soon.  I feel so sick all the time.  I don't have iron poor blood and it didn't show on a normal blood panel now the doc is checking my b12 level.  Is there any other thing that should be done?  I have most of the symptoms except for the most extreme (psychosis, heart failure) but I'm worried that the blood test won't show anything again. How hard is it to diagnose?  Any info from anyone would be helpful. confused Thank you.

 debbikay  smurf Crohn's, ADD, Migraines, Anxiety & Depression….I take: Lexapro 10mg, Topamax 25mg, Adderallxr 20mg, & Sulfasalazine


Forum Moderator

Date Joined Nov 2003
Total Posts : 7119
   Posted 2/10/2008 4:07 PM (GMT -7)   
It is not that difficult to diagnose pernicious anemia. Lots of blood tests. There is a really good description of the tests used to make a diagnosis here:
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 2/11/2008 7:07 PM (GMT -7)   
They had a show on Mystery Diagnosis about this and the woman they featured had all the symptoms, including psychosis, *except* anemia. I forget all the tests they did on her. Since I have neuropathy of the legs which they blame on either my diabetes (very mild) or my plantar fasciitis and I was also treated for H. pylori in which they noted that the gastric mucosa looked atrophic, I plan to ask about this at my doctor's appt in march.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  

Veteran Member

Date Joined Apr 2007
Total Posts : 532
   Posted 2/11/2008 10:14 PM (GMT -7)   
It is a falacy that you have to be anemic from B12 deficiency. Check out thissite. Good luck and don't take any B12 before the test (it can throw the result off) or get the specific labs that rose reccomends. I popped about 3 SL tablets right after my test. I just knew that's what was wrong with me by reading the symptoms. I was never anemic.
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 

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