Crohnsdaddy... Do you take the metamucil before/after meals or just throughout the day? I've been taking the fiber pills with meals but I wasn't sure it's that's correct.
EN is enteral nutrition, a.k.a. nutrition from a can Writer, on this forum, is an expert. For now I'm trying to stay drug-free to give my liver a break.
I read about EN in journal articles written by doctors from Australia, UK/Europe, and Japan . It can induce remission (although it's not as effective as steriods) and mucosal healing. Most of the data is for elemental/predigested formulas but I'm trying a polymeric formula, Nutren from Nestle, first since the cost is a lot lower. Why they work isn't well understood, but these formulas are able to decrease intestinal permeability similar to some of the new classes of drugs (e.g. Teduglutide, hydroxylase inhibitors) currently under investigation for Crohn's.
My plan is to do this exclusively for 3 months, but I need to find a way to stay "regular" if it's going to work out. This of course is barring no change in how I feel... Right now my Crohn's symptoms are mild and my bloodwork is improving. The one GI doc I have seen so far did not object too much to my trying this strategy, though he had never heard of it and pooh-poohed it entirely. A few on HW have done this but there are more on the Dragonpack forum.
Good news! Today I heard back about my blood tests--last was in December when I spiked fever. ESR is down from 57 to 38, and CRP is down to 0.7 from 19. My red blood cells are still small, not sure what that means. Folate, B12, and iron normal, and liver enzymes OK
Since I don't really have much in terms of symptoms, the GI doc said the only way to monitor me is by testing CRP, which apparently is now normal. I'm not sure I believe it--I don't trust the health center 100% since they have messed up before and given me someone else's results. I plan on re-testing in one or two months, depending on how things go.
Post Edited (Illini) : 2/13/2008 11:51:34 AM (GMT-7)