eight months I saw a lot of doctors and had almost every blood and imaging test possible...plus two procedures in interventional radiology (ouch!). Finally my primary ordered a HIDA scan to rule out gallbladder trouble and a colonoscopy to rule out Crohn's, since that's all that was left. That was my attitude going into it--that the colonoscopy would rule out Crohn's--since I had already had a "normal" SBFT about
six months earlier, and my symptoms were not typical of anything, including Crohn's.
The local GI I had consulted previously for liver problems did the colonoscopy. He is a hepatologist and does not know much about IBD. The colonoscopy (TI narrowed and ulcers), biopsies, and CT enterograph (final >5 cm of Ileum inflamed) were suggestive of Crohn's, but I think what really cemented it for him was the Serology 7 results, positive for Crohn's and high titers.
He was 100% surprised, but totally convinced. When I saw him at a follow-up appointment, he happily clasped his hands together and told me he was "excited to make the diagnosis"--I guess excited to finally solve this puzzling mystery! I didn't find it that exciting...I was holding out for something curable by antibiotics.