My daughter (3 yrs old in March) has been dealing with IBD for about a year. I've been trying to stay really positive about things, but my husband is having a really tough time with it. He won't read any books on it because he says he just "doesn't want to know." Every time she poops and there is blood he gets depressed. He has a lot of questions, but I think figures ignorance is bliss or else figures that if he reads about it, it will make him even more depressed. He is really overprotective of her and if she gets hurt in any way, he is beside himself and is very extreme in his thinking(ex. she fell and bumped her head and he was worried that she would have a permanent bump and that it would never heal). I know that he loves her so much and just wants her to be "normal" but I think that there could be an easier way to deal with what is happening. Does anyone have any advice to give him or me?
Mother to daughter (3 yrs) who has either CD or UC (Ped GI hasn't officially diagnosed her yet because she's so young)
She has taken Prednisone (20 mg and lower)- successful, but we could never wean her without it reflaring
Asacol 3 times a day-unsuccessful
Colazal 3 times a day- unsuccessful (made it worse)
VSL, Flagyl, Xifaxin
No meds right now
Thinking about starting 6 MP