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New Member

Date Joined Feb 2008
Total Posts : 7
   Posted 2/14/2008 10:57 PM (GMT -7)   
Hey Everyone.. I am a new member on here but unfortunately not new to the wonderful world of crohns. For a breif overview I was diagnosed back in 2004 when they thought I was suffering from appendicitis(sp) but the colonoscopy showed it was crohns. Luckily I happened to be seen by an excellent GI doc right from the start because I had been suffering from the symptoms for months but was accused of having anxiety problems and other issues by my primary care doc at the time. Needless to say by the time I was diagnosed the crohns was severe and my intestines were covered in huge ulcers. After many hospitalizations and different drugs I finally got it somewhat under control but had to have bowel resection surgery in 2005 to remove the scar tissue from all the damage. Since then the crohns has been in active and controlled mainly just by remicade infusions every three months. I had a baby last year- he is now 13 months old and during and right after my pregnancy I felt better than I had for years(minus all the morning sickness) and I guess I got on a bad eating track again... Well now for the point of why I am writing.. just recently I started having stomach pains which sent me back to my GI and he sent me for a ct scan on tues which showed thickening of the wall of the intestine where I had my surgery back in 05. So now I have to go get a colonoscopy done next wed(fun fun) to see whether it is a stricture (sp again sorry its late) or active crohns and I guess I am just nervous that there might be a possibility of more surgery or high dose steriods. What makes me more nervous is that I work the weekends so I can stay home with my son to aviod daycare- which in turn has turned him into a complete mamas boy so I need ot know how be balance having a child and being chronically ill. I feel like I want to stay strong so he doesn't see me as ill or sick.. but at the same time there are some days when we are home that I have to use all my strength to get off the couch. Well I guess I am just rambling because the thought of future problems and hospitalizations and being unable to help my husband around the house and care for him scare the crap out of me...
Anyone have any advice thoughts or ideas???

Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 2/15/2008 12:54 AM (GMT -7)   
Hi Chronie24, welcome to HealingWell, I'm glad you joined the board. This is a place of invaluable support and I'm sure you'll see that for yourself soon enough.

It definitely sounds like you have your hands full. On the plus side, it sounds like you have some true positives in your life: a healthy son, a husband who helps around the house, an excellent GI, and symptoms that are likely physically explainable by something, which will in turn likely be relieved by something (if that makes any sense). As you'll find as you peruse the boards, all of these points are profoundly helpful! Okay, now the negatives: the symptoms themselves, the c-scope next week, the prospect of more surgery and/or steroids, the prospect of hospitalization. Not ever a pretty picture.

My rapid advice would be this: day by day. Don't get ahead of yourself. The journey of a thousand miles begins with one step, etc. This is all easier said than done, I know. I've been there too. But when the anxiety, uncertainty, fear, or whatever you call "that feeling" gets out of hand, this is where to start. And I remind myself of that at least once every half hour these days!

I hope you keep posting, I look forward to getting to know you better.
Co-moderator - IBS Forum

Regular Member

Date Joined Apr 2007
Total Posts : 254
   Posted 2/15/2008 1:52 AM (GMT -7)   

Dear chronie24 welcome!!!!

I completely understand your fears being a mother of two girls myself.  Sometimes I'm thinking what is going to happen to my girls if go to the hospital again.  But then again, I tell myself this: "every day when I have to go to work, I have to cross a big avenue.  Do I ever think of the possibility that maybe I will get hit by a car and die?  No, I don't.  I just cross the street thinking of millions of small stuff except that!"  Now, the chances of being hit by a car are much higher, than going to the hospital because of my crohns.

My point is that of course it's only normal to be a little anxious of what is going to happen in the future, but that way, we cannot enjoy today!!!  Otherwise we wouldn't cross the street, walk outside, swim etc.

Enjoy every day of your life, and if something bad comes up, you can deal with it then.  Don't spend everyday of your life worrying of what tomorrow may bring...

Christina tongue

Regular Member

Date Joined Jan 2008
Total Posts : 95
   Posted 2/15/2008 5:19 PM (GMT -7)   
Welcome Chronie 24, I know its hard to deal with your disease and a new baby and husband. I always looked at it like this one day at  atime and I was thankful everyday that my son was born healthy (premie) but healthy, also that I have a caring husband who understands that I cant always do the things i need so he is right there to help. I did learn how to hide my feelings pretty well mind over matter can do wonders, but as i am older now i know its important to be honest (most of the time) Good luck with everything and hang in there be strong for your family, and its ok if they see you weak every now and then . Even the healthiest person has weakness  . If surgery is the anwer maybe it will put you in a nice remmission while your child is growing up. Plus you found a wonderful place to come where everyone understands !!!!!!! 

Post Edited (ALI9) : 2/15/2008 5:35:00 PM (GMT-7)

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 2/15/2008 5:32 PM (GMT -7)   
Welcome, I would just like to echo Sarita's words, baby steps is the best way. The best thing is you've found this site.
While some things may sound scary, lots of times we just have a good old laugh...

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

New Member

Date Joined Feb 2008
Total Posts : 7
   Posted 2/20/2008 8:30 PM (GMT -7)   
Hey everyone,
I am sorry it took me so long to reply but its hard to find quiet time to actually use the computer! Thank you everyone for your comments.. it feels great just to be reassured every now and then by people who actually understand what is going on.
Also for an update I had my colonoscopy today and the good news is nothing showed up but the bad news is nothing showed up. So the doctor said that since there is no obvious active crohns or stricture in the large intestines he wants me to go for a CT scan of the small bowel which is scheduled for tomorrow to see if he can find where the stricture is exactly that he saw signs of in the last CT scan because he is pretty sure that that is what is causing all my problems. and as he put it he said then the surgeon will just pop out about 2 cm of the small bowel and since the crohns seems to be controlled with the remicade that I should do great after that! So hopefully tomorrow they find the spot or find something that is causing this pain so I can ust get it taken care of...
Thanks again for everyones support it means alot!
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