New Member

Hey Everyone.. I am a new member on here but unfortunately not new to the wonderful world of crohns. For a breif overview I was diagnosed back in 2004 when they thought I was suffering from appendicitis(sp) but the colonoscopy showed it was crohns. Luckily I happened to be seen by an excellent GI doc right from the start because I had been suffering from the symptoms for months but was accused of having anxiety problems and other issues by my primary care doc at the time. Needless to say by the time I was diagnosed the crohns was severe and my intestines were covered in huge ulcers. After many hospitalizations and different drugs I finally got it somewhat under control but had to have bowel resection surgery in 2005 to remove the scar tissue from all the damage. Since then the crohns has been in active and controlled mainly just by remicade infusions every three months. I had a baby last year- he is now 13 months old and during and right after my pregnancy I felt better than I had for years(minus all the morning sickness) and I guess I got on a bad eating track again... Well now for the point of why I am writing.. just recently I started having stomach pains which sent me back to my GI and he sent me for a ct scan on tues which showed thickening of the wall of the intestine where I had my surgery back in 05. So now I have to go get a colonoscopy done next wed(fun fun) to see whether it is a stricture (sp again sorry its late) or active crohns and I guess I am just nervous that there might be a possibility of more surgery or high dose steriods. What makes me more nervous is that I work the weekends so I can stay home with my son to aviod daycare- which in turn has turned him into a complete mamas boy so I need ot know how be balance having a child and being chronically ill. I feel like I want to stay strong so he doesn't see me as ill or sick.. but at the same time there are some days when we are home that I have to use all my strength to get off the couch. Well I guess I am just rambling because the thought of future problems and hospitalizations and being unable to help my husband around the house and care for him scare the crap out of me...

Anyone have any advice thoughts or ideas???

Dear chronie24 welcome!!!!

I completely understand your fears being a mother of two girls myself.  Sometimes I'm thinking what is going to happen to my girls if go to the hospital again.  But then again, I tell myself this: "every day when I have to go to work, I have to cross a big avenue.  Do I ever think of the possibility that maybe I will get hit by a car and die?  No, I don't.  I just cross the street thinking of millions of small stuff except that!"  Now, the chances of being hit by a car are much higher, than going to the hospital because of my crohns.

My point is that of course it's only normal to be a little anxious of what is going to happen in the future, but that way, we cannot enjoy today!!!  Otherwise we wouldn't cross the street, walk outside, swim etc.

Enjoy every day of your life, and if something bad comes up, you can deal with it then.  Don't spend everyday of your life worrying of what tomorrow may bring...

Christina

Welcome, I would just like to echo Sarita's words, baby steps is the best way. The best thing is you've found this site.
While some things may sound scary, lots of times we just have a good old laugh...