hey Jen, I mostly wanted to say hi and I am so sorry your daughter had to go through all of that as a baby and sorry that you have that worry. when I was at my sickest I was so glad it was me and not my kids or husband.
I wanted to mention a thought that always rattles around my head. I understand that CD is a chronic disease, yet I have met and talked to folks who have one flare, are treated, and it never comes back. I might be one of those, so far. the trouble is, we don't hear from those people here, they go on with their healthy lives. of course you don't want to gamble with your baby, but I am sure it feels like a gamble either way...fear of illness or life-long meds is scary either way.
I had absolute positive CD, did about a year of meds, and have never had inflammation since. I have chosen to go off gluten and that has improved my quality of life immensely, but I am still in the dark as to where the CD went and if I had it in the first place.
take care, yp
48 y/o woman. Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.