Hi Again, LavenderBlue...I did say that I've experienced many things over 25+ yrs. I've had an intestinal/vaginal fistula for approx. 3yrs. In fact, it seems that it formed after I stopped the Remicade. I must say that I was a tad upset when I discovered that, what I at first assumed was breakthrough bleeding, was actually waste! I thought...noooo...what numerous tests/surgery are they going to put me through now? I don't think that my GI really believed me until he received the results of a barium enema which I was having for a separate issue. Anyway, the decision was to wait & see. Fortunately, I didn't have continual problems with this...although, eventually having an ileostomy may be part of the reason. I'm still routinely asked if I'm having any discharge but so far, so good. Hopefully, Remicade will do the trick for you. Again, best of luck w/ your upcoming infusion & if all goes well, careful w/ the Chinese food (I used to get really sick from Chinese...I learned that if I ate it in very small portions, I was able to better tolerate it...very common w/ Crohn's...many won't eat it at all, especially the vegetables & soy sauce). One good thing about
an ileostomy, I can eat a wider range of foods, including Chinese!
25+ Crohn's Disease Sufferer; 2yr. Ostomate (ileostomy)
2yr. Remission for Conjunctival Malignant Melanoma
Ciprofloxacin as needed; Children's Vitamin/B-12 Supplement
Xanax as needed; Clonazepam 3x daily; Levothyroxin for Hypothyroidism
Several Eye medications used to help prevent further damage resulting from treatment for eye cancer
(former 6-MP/Remicade user - ceased due to cancer diagnosis)