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Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 2/20/2008 11:49 PM (GMT -7)   
Evidently he has some, because he is taking the plunge and signing up for a special prescribing program so I can get some Lotronex (alosteron HCl). This may assist me in perhaps avoiding hospitalization for dehydration on a regular basis. Do you guys know about this drug? (Sorry, y'all can't take it because you have been diagnosed with Crohn's disease - it's massively constipating, evidently, and can only be used for the "special" people who go 239847 times a day with no known cause because it can cause ischemic bowel disease).

Hmm...small chance of ischemic bowel disease, or virtually 100% chance of suffering and re-hospitalization for chronic dehydration? I'm going to go for it! To heck with the naysayers, I'm a risk-taker!
Co-moderator - IBS Forum

Regular Member

Date Joined Jan 2008
Total Posts : 491
   Posted 2/21/2008 4:48 AM (GMT -7)   
I keep getting dehydrated.... I am very interested in learning more about this drug....

Regular Member

Date Joined Oct 2005
Total Posts : 168
   Posted 2/21/2008 2:47 PM (GMT -7)   
I'm interested too. If I get sick and vomit for a day I can almost bet on a hospital visit to rehydrate. Or double up on my TPN if I can convice my homehealth company to let me. I've had constant D for a year. No breaks.
diagnosed: Crohn's Aug 2005
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN

Regular Member

Date Joined Jul 2006
Total Posts : 330
   Posted 2/21/2008 3:29 PM (GMT -7)   
That sounds pretty interesting. You'll have to keep us all updated on how it works. My fingers are crossed for you that it works with no bad side-effects!

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 2/21/2008 4:06 PM (GMT -7)   
I hope it works Sarita. At least with you becoming a doctor you might be able to start giving yourself home rehydration iv's lol. I had EMT friends that would "rehydrate" after a night of partying.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!

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