I don't know anything about
the calprotectin tests, but just wanted to let you know that you're not alone! Someone correct me if i'm wrong, but I believe a lot of us were misdiagnosed or ignored by our PCP's and GI's for many years before being diagnosed. I was told I had growing pains, anxiety, stress, not eating enough fiber, Irritable bowel, anorexia (my personal fav) and a smathering of other things before I got the correct Crohn's diagnosis. And even then, sometimes they'll only say "resembles Crohn's" in the medical records. Argh! Not that I'm saying we like being diagnosed with Crohn's, it's just nice to put a name to a monster.
Did they do biopsies with the colonoscopies? They don't make it up into your small bowel with the scopes, so you never know if you have inflammation up there. I can't say I know much about
Pentasa, I haven't been assigned that drug. At least not yet! Is your "Dr" that you mention a PCP or a GI folk? If not GI, you should see one.
Also, my early symptoms of Crohn's were very similiar to yours except the diarrhea (I was originally constipated). but the abdominal cramps and the blood and mucous are the same. even the aching joints and fatigue. I hope you get some relief and answers soon.
diagnosed: Crohn's Aug 2005
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN