Ok so I have a high pain tolerance, and do not mind needles or IV's by any means, but mother of pearl this is getting old. I have literally had hundreds of needle sticks since September, and the frequency is not lessening. Every time I have to get an IV, which is often unforunately these days the nurse (who never misses) has to poke me atleast 3 times to find a vein. Before this I have to sit with hot packs and hot blankets around both my arms for about 20 minutes just so they can see a vein, and still it takes forever. Today at my Remicade infusion it took 2 hours, and 6 nurses, and 5 pokes to finally find a vein. The head nurse had to come in and say that she was going go order a picc line because all the veins they could see where scarred up, and every other one is teeny and pretty much pathetic. The guy nurse asked if he could maybe check my feet for veins...WHAT?! EEK! So in the middle of ordering a picc line just for remicade one of the nurses finally got a tiny little vein the middle of my back forearm, and it hurt like heck and left a nice bruise. It burned the whole time, and they had to keep heat on the site to keep the vein open. This seems like a bit too much effort for a blood draw or IV if you ask me. The nurses all asked me if my doc had talked to me about a portacath because it was definitely time to get one if not just consider it. So they sent a letter to my GI saying that a portacath is needed to access a vein, and to chat about it with me.
Has anyone else had this issue, and how has the GI reacted to this request. I have known many people with a port (not for crohns) and at this point I am all for it. My poor arms are bruised, and have track marks, which pretty much makes me look like an addict. Good times!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Remicade every 6 weeks, 6-mp, Nexium (GERD)
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines, GERD
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon