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there's Hope
Regular Member

Date Joined Nov 2006
Total Posts : 145
   Posted 2/24/2008 8:14 PM (GMT -7)   
Just looking for some advice regarding disability. I applied and did my phone interview and now I have to fill out this paperwork that lets them determine if I can work. It asks things like, what do you do all day and how often do you leave the house, can you bathe yourself.. etc. Its getting crazy. Anyone have advice how to best answer the questions?
prof- I would like to take you up on the offer for help if you don't mind.
26 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Reglan, Ultram, Celexa, Seaonale, Seroquel, Fish Oil, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"

Veteran Member

Date Joined May 2003
Total Posts : 2481
   Posted 2/24/2008 10:20 PM (GMT -7)   
Be honest. Do not sugar coat your symptoms. Be blunt about how this disease affects every aspect of your day. bathroom visits, length of time in the bathroom, pooping accidents, cleaning your bathroom/pooping messes, resting, pain, fatigue, lack of concentration, meals, dizziness, taking medicine etc.
Any legitimate negative aspect may be worth mentioning.

Post Edited (Roni) : 2/24/2008 10:35:43 PM (GMT-7)

Veteran Member

Date Joined Aug 2003
Total Posts : 1017
   Posted 2/25/2008 7:20 AM (GMT -7)   
I agree with Roni, be honest and as much as it hurts tell all the truth. I know it was difficult to help my husband fill out his, but you want as clear a picture as you can give them. Think of it as a computer, someone you cannot have read anything into what you say. Say exactly what you mean. I thought it was very draining to fill out the paperwork.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.

Regular Member

Date Joined Feb 2008
Total Posts : 298
   Posted 2/25/2008 12:53 PM (GMT -7)   
This my sound like a completely ignorant question, but where do you file for disability? I am being medically discharged from the Navy due to my CD. I am unable to stay in remission w/ out the use of steroids but can no longer be on steroids due to the medicine weakening my bones (caused osteopenia in my spine). I am def not able to work and need any help I can get!
Battling w/ CD for 2 years...
Osteopenia in the spine caused by prednisone
Currently on Remicade

Regular Member

Date Joined Oct 2007
Total Posts : 323
   Posted 2/25/2008 4:06 PM (GMT -7)   
HI there's Hope, I'm from the lupus forum... I seen your post about disability I'm on it, your right the paper work drove me crazy, be true about everything if you can have your doc. help you with it, my doc. did. If you cannot do anything tell them, if you can vacuum, take a shower tell them, how many times a week doesn't mean you have to be imobile.Your just sick..

Regular Member

Date Joined Aug 2005
Total Posts : 42
   Posted 2/25/2008 6:13 PM (GMT -7)   
this site helped me get disability ( I didn't even know it was something you could do) and the people are right here tell them everything that you go through. Not only physically but mentally and emotionally. The pain, how you don't care if you're dressed, how shopping for food is a rude chore as you cant eat it without wanting to dive over a bridge, I also added i was resentful of the fact that people can eat and I cant. You cant think because your exhausted from pain and or the medication for it, how your body has been so drained for so long there's improper concentration and agitation at even simple things that cant be helped, do not leave anything out use many adjectives to try and describe that this can barely be called an existence nevermind a life. how because your so drained everyday chores take five times as long to do how you need frequent rest. Remind them of how they feel with just one bout of diahhrea, this is your daily life. Also how getting along with people due to either the symptoms the pain or medications is not as it should be I was easily agitated and angry and annoyed when I'm symptomatic with my family even nevermind people I was working with. People would say things like oh youll never get that and I was foolish to try but my records spoke for themselves I was approved without a problem first try, mention everything you can. I also threw in that not only I could not eat, the thing people do to live and for pleasure I also had inflammation in the vaginal wall which made intercourse extremely painful so the two things people do for not only survival but pleasure I could not do. See if they could take that for even One week : ). Anyway good luck get your Dr's to send in your records asap. I also wrote about 50 words to "describe my pain" relentless was my favorite. I really wrote as many aspects of this disease and how it affected my life as I could possibly think of. Hope it helps : )
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