I don't have any familiarity with the word "pancolitis"... but I can understand what you're going through to a point...
My understanding is very similar to what you already stated....
crohnies aren't supposed to smoke, but UC guys get to.... I never thought that seemed quite fare!
Anyways, I'm a crohnie smoker, and I also notice an increase in symptoms as I taper and try to quit. Talk about
being stuck between a rock and a hard place! Smoking is bad for my small intestine - but good for my large intestine as far as I understand it... so what are we supposed to do? I've gotten it down to one cigarette a day. And acupuncture. And increased Remicade (to every 4 weeks until I have managed to REALLY quit). And I still go outside like I'm going to smoke, but I just walk for a bit and do some deep breathing to keep my nerves leveled out. My motivation is that I want to get pregnant this spring. I try to tell myself that every cigarette that I DON'T have is one more day that I get to spend with my munchkin. I'm sure that's not scientifically true, but it helps me keep my motivation up.
I don't think there is an easy answer for us.... more of a conglomeration of nonsense that we somehow have to mix and match into a personal solution. I've also seen a prescript
ion aid for quitting smoking that is like a little inhaler - you take "hits" of nicotene via the inhaler until you've kicked the physical habit I guess.
I'm just hoping that the increased remicade and the "alternative" methods will ease any potential flare up from quitting.
Good luck to you - whatever you decide!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered.
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."