Crohns Pancolitis & smoking

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Regular Member

Date Joined Feb 2008
Total Posts : 42
   Posted 2/29/2008 12:21 PM (GMT -7)   
Hi for years i have had Crohns Pancolitis which i misunderstood and assumed was the same as ulcerative colitis...
anyway when i was younger and in remission for 8 years i smoked , each time i gave up i had a flare up or something similar but not requiring immediate steriod meds etc
i recently gave up for nearly 5 months or so and had a terrible flare up , i have started smoking 2 a day again in an attempt to get back in remission along with lots of other new meds such as azathiprine and remicade.Although reading about remicade it says the TNf inhibitors dont work as well if you smoke ..
does anyone else have pancolitis and also smoke ? - ive heard that Crohns does not like smoking but yet people with UC can be better off continuing to smoke.
I imagine this is a touchy subject but if anyone has any experience or comments i would be very greatful to hear

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/29/2008 1:15 PM (GMT -7)   
I believe PB4 is the lady you are looking for. She too can't quit smoking without getting ill. Unfortunately she is allergic to all the Crohns meds and treats hers with natural meds.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Glad Bag
Veteran Member

Date Joined Mar 2007
Total Posts : 699
   Posted 3/6/2008 5:17 PM (GMT -7)   
i have heard of another lady my ex knows that says she uses the nicotine patch rather than smoking. She thinks it calms her nerves....who knows?

i would love to quit smoking, but i don't think anyone would want to be around me then! i would be forever grumpy!

at 2 a day, you can smoke forever, and never get cancer, i say why not? as long as you can keep it on that kind of level.
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 3/7/2008 9:41 PM (GMT -7)   
I don't have any familiarity with the word "pancolitis"... but I can understand what you're going through to a point...
My understanding is very similar to what you already stated....
crohnies aren't supposed to smoke, but UC guys get to.... I never thought that seemed quite fare!

Anyways, I'm a crohnie smoker, and I also notice an increase in symptoms as I taper and try to quit. Talk about being stuck between a rock and a hard place! Smoking is bad for my small intestine - but good for my large intestine as far as I understand it... so what are we supposed to do? I've gotten it down to one cigarette a day. And acupuncture. And increased Remicade (to every 4 weeks until I have managed to REALLY quit). And I still go outside like I'm going to smoke, but I just walk for a bit and do some deep breathing to keep my nerves leveled out. My motivation is that I want to get pregnant this spring. I try to tell myself that every cigarette that I DON'T have is one more day that I get to spend with my munchkin. I'm sure that's not scientifically true, but it helps me keep my motivation up.

I don't think there is an easy answer for us.... more of a conglomeration of nonsense that we somehow have to mix and match into a personal solution. I've also seen a prescription aid for quitting smoking that is like a little inhaler - you take "hits" of nicotene via the inhaler until you've kicked the physical habit I guess.

I'm just hoping that the increased remicade and the "alternative" methods will ease any potential flare up from quitting.
Good luck to you - whatever you decide!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 3/8/2008 6:16 PM (GMT -7)   
I have Crohn's Colitis and have now had 4 surgeries within the past 12 months. I have smoked here and there and really saw no difference in my symptoms. I did change GI docs after all of this began and I was even told post op if you are even around second hand smoke it highly increases the rate at how fast the CD can return....he gave me a numeric percent but I forget it now)...I began again and was arond 2nd hand and began having severe pain 1 month after my ostomy reversal. I have not smoked nor been around second hand smoke (except for walking outdoorsnear those who are smoking) and again 1 month post o same pains joint gut etc. I am hoping that going back on HUmira as soon as I was able too rather than trying to find my right maintanence med will slow and stop what is going on. I had these same type of gut pains before and back then they were passed off as healing pain then the releif back then was finally relieved when a fistula broke through....unfortunatley that was what my 4th surgery was for since no other means would heal it.

I know it is the nicotene or that is what I recall reading that is the favorable item in the ciggarette that helps UC. I even heard at the time some docs were scripting the patch for patients. I also heard otehrs with UC were given a set "safe" amount to smoke per day. Not reading this personally in a medical journal etc I would talk to your doc.

Hard to say about CD since I was Dx at 8 yrs old and never touched a ciggarette until I was 17. Hope you feel better soon
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined Feb 2007
Total Posts : 33
   Posted 3/9/2008 5:35 AM (GMT -7)   
I have Crohn's Colitis and smoke a pack a day.
Remicade works great for me and has put me in remission.
I will not even try to quit as I am sure the stress will
make me flare.

58 yr old female
Dx with Crohn's-Colitis January 2007
Meds: Remicade, Aciphex

Mark Mac
Regular Member

Date Joined Mar 2008
Total Posts : 41
   Posted 3/9/2008 11:29 AM (GMT -7)   
I've got straight crohn's and whether it's the stress or whether nicotine has some therapeutic effects, I flare every time I try to quit too. On the other hand, its the only time I can ever seem to put any weight on. Eventually I would still like to quit. I'll see if the Humira works...

This forum is so great. I was just thinking last night about posting this topic and I wake up and here it is. Thanks so much!
Diagnosed CD in 93'. Currently taking Humira, and darvoset for pain. Also getting acupuncture and chinese herbs as well as a massage when I can afford it. 107 lb

"I cannot promise that change will make things better, but change must occur if things are to become better"

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