I'm hoping you all can help me sort out my thoughts before I see my GI next week. I have been feeling pretty good for the past year and a half or so, and have been taking Asacol for maintenance. In November my life become very stressful and I've been very unhappy since then. (I am trying to change that and deal with my stress better.) That always affects my Crohn's (in fact it is the main thing that affects it), so I haven't been feeling my absolute best since then, but not bad. I don't have any pain or bleeding. I can eat and I have energy and I'm at a normal weight. My main problem is constipation due to a stricture (which is old scar tissue from when I was first diagnosed). I'm used to it and it's manageable and I try to be careful about not eating things that make it worse. Overall, I feel good. (I also follow the SCD which I feel helps keep my Crohn's under control. I know it's still there, but I feel much better on this diet.)
In January I had a colonoscopy with biopsies and my GI is alarmed and says there is lots of active disease and ulcers in the biopsies. She wants me to start Prednisone. (I've never taken it before even though my doctors have always predicted that I would need to start it any day now.)
I have always considered Prednisone and the serious drugs a last resort and am very afraid of the side effects. I would rather keep it for when I'm really sick, not start it when I basically feel fine (I realize there are arguments against this position). My feeling is that my intestines will never be "normal." But if I can get by with just Asacol, why get involved in all the steroid dependence and complications? I'm going to have this disease for the rest of my life, so I feel like a little inflammation, as long as it's not negatively affecting my life, is something I can accept and live with.
What do you all think?