I' was diagnosed wit severe Crohns in August of 2009, but i've had 3 remicade treatments. The first 2 i had no side effects, well except for being extremly fatiqued. The 3rd treament Sept 30th. Attacked my arthritis, making it 10X's wore then it was. It actually felt like there were a gazillon little people in my body, stabbing me at the same time.
It was weird because the morning I had that 3rd treament I was ok with my arthritis, but by 9 PM that night, I woke up in more then extreme pain every where on my body, From my toes to the top of my head. Along with a 104 temp, no one could even touch my skin. I'm 51 yrs old, and very acusrtomed to extreme pain, But this was far worse then the pain I had with Crohns, Natural child birth, endless surgeries on my knees etc. etc. A Quick call to the Hospital, and they sent an ambulance to get me to the ER.
I won't be having Remicade again. At the end of November My GI Dr. is going to try Humira. But then I read the side effects and the rare side effects, and they're bad if not even worse then Remicade. So I will wait and see. My Dr told me that we have to figure out which is the lesser of the 2 evils.
hope this helps
Sally from Milton NH.
Prevcid DR (1) 30mg tablet every morning
Potassium CL ER (1) 20mg in the morning
Ascecol EC (4) 40mg tablets 3 X a day
Pomrthazine (1) 12.5 mg when needed for a quesy stomach which is basically 3 times a day.
Dicyclomine (1) 20 mg tablet 3X a day
Oxycodone (1) 30mg tablet every 4-6 hours.
Vicodone APAP (2-3) 7.5-750 At bed time
Steroids do not work for my Crohns at all