mouth sores - ouch

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Regular Member

Date Joined Aug 2007
Total Posts : 39
   Posted 3/12/2008 4:40 PM (GMT -7)   
Hi everyone,
I have been doing good but have now gotten a strange sore on my cheek in the back of my mouth....has anyone had CD show up orally?  If so, what were the symptoms?  thanks :-)
DX AT 39 (2005)

Regular Member

Date Joined Mar 2008
Total Posts : 221
   Posted 3/12/2008 4:43 PM (GMT -7)   
hey! I actually got really painful mouth sores right before I got diagnosed. They hurt SOO bad!! My dr. told me they were a symptom of CD. They eventually went away after about three days. I felt like I had a bunch of cavities or something my mouth, but actually, they were big gashes in my cheeks/gums.

My dentist suggested swishing for about 30 seconds with cultured buttermilk. It is the most disgusting thing ever, but it completely worked!

Good luck! :)
26 y/o, diagnosed at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, tired all the time (except when on Prednisone), occasional abdominal pain
Weigh loss, but scared that once I start the Entocort where will be lots of weight gain :(

Regular Member

Date Joined Aug 2007
Total Posts : 39
   Posted 3/12/2008 4:47 PM (GMT -7)   

thanks I 'll try the buttermilk.


DX AT 39 (2005)

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 3/12/2008 5:32 PM (GMT -7)   
There is an oral paste available by prescription (Aphthasol) which heals those guys in half the time and helps dramatically with pain in a few days.
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05
--1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone
--tried Prochymal in Phase III study (can't wait til it's approved!)
--waiting to start Tysabri
--single mom to 10-year-old girl

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 3/12/2008 6:11 PM (GMT -7)   
There is another paste I got from my doc and cleared them up .....Oracort Paste......I am sure thats what it was called I have to look in my own lil pharmacy BUT....again I am sure thats it

Hope you get rid of it
I know I had a few on my sides of mouth and they hurt like hades

  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
         Mod for Alzheimer's, Anxiety and Panic and Co Mod for Crohns Donate today to keep HW helping others

Regular Member

Date Joined Feb 2005
Total Posts : 192
   Posted 3/12/2008 6:15 PM (GMT -7)   
I get them too. Used to get them lots before my CD diagnosis. Not sure if the meds are keeping them away, but I don't get them nearly as often now.
Crohn's- Dx'd Sept.16th 2004
Imuran, Prednisone, Humira, Nexium, Iron, Donatal

"Whatever tomorrow brings, I'll be there
With open arms and open eyes"

Regular Member

Date Joined Jan 2006
Total Posts : 355
   Posted 3/12/2008 8:28 PM (GMT -7)   
Try Kenalog in Orabase paste. It's a prescription. It will cut the time down for those nasty little suckers. Before Humira, I had them daily for most of my life. It was so painful. Good luck.

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 3/12/2008 9:41 PM (GMT -7)   
I have it in my mouth and my GI scripted me Sucralfate and it works pretty good.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 3/12/2008 9:47 PM (GMT -7)   
If you take a good probiotic daily, it should keep them at bay...I havn't had a single mouth sore since taking the primadophilus reuteri everyday for the last 3ish yrs now....and I used to get them frequently and big ones especially on/in the roof of my mouth (they were usually deep).

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 3/13/2008 1:50 PM (GMT -7)   
I'm going to keep the buttermilk and sucralfate in mind. I've tried most everything else that I know of. Maybe I won't need them now that I am on the probiotic. Those pastes don't do much for sores in your tonsil area, under your tongue, etc. They are very hard to apply and stay on.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 3/13/2008 2:45 PM (GMT -7)   
also u can try good ole' warm salt water...i mean while ur waiting for the script or the probiotics to work
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 3/13/2008 2:49 PM (GMT -7)   
Sometimes these sores are caused by a virus all people with AI diseases and or on immune suppressents are more likely to get them. If they are viral in your case they will respong very quickly to Lysine-an amino acid that viruses don't like.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 3/13/2008 4:42 PM (GMT -7)   
Hey there,
The mouth ulcers are pretty common. I get them off & on. Especially right before major flares. The best thing I've found is old school: Salt gargles & if you can reach them, Annbesol. When I treat mine this way, they are gone in 24-36 hours.


Regular Member

Date Joined Aug 2007
Total Posts : 39
   Posted 3/13/2008 6:26 PM (GMT -7)   
thanks everyone....can anyone tell me how I can tell the difference between a run of the mill cancor sore and CD in my mouth?
DX AT 39 (2005)

Regular Member

Date Joined Mar 2006
Total Posts : 195
   Posted 3/13/2008 7:37 PM (GMT -7)   
I have frequent canker sores and have found that swishing hydrogen peroxide around in my mouth several times a day works well. It actually helps me more than any of the high-priced ointments and such.  I think these pesky sores are just another wonderful side effect of this rotten desease. confused

Regular Member

Date Joined Sep 2007
Total Posts : 39
   Posted 3/13/2008 7:57 PM (GMT -7)   
I had sores in the mouth also which occurred during my main onset of CD symptoms and prior to a final diagnosis. I read a post on here about using Listerine and swirling it around your mouth whenever you feel a sore coming on. It worked for me! It got rid of the ones I had quickly(while the ambesol my PCP suggested provided only short term numbness)and kept new ones which I could feel starting from becoming full blown painful mouth sores. And as a bonus, I had minty-fresh breath
Disclaimer: I do not work for, own, or advertise for Listerine or any other mouthwash company ;-)
47 years old
Dx 3/07 Moderate Crohn's in terminal ileum-Probably had it for years earlier
Rx Prednisone initially for 8 weeks-40mg/day then tapered down to 0
    Currently on Pentasa-2000mg/day

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