It's been awhile since I've posted, so I wanted to catch up with everyone. I went to a new gastro who did the Prometheus tests. After 34 years of progressing through dx's of nothing, to IBS, to UC, then on to Crohns, with chronic gastritis too, my new gastro said the Prometheus tests 'prove' it to be celiac disease, not Crohns....!!!
Now for the funny part....
He wants to do the camera pill-thing to be sure, but my insurance won't pay for the camera pill UNTIL he does a colonoscopy and an endoscopy. Now I've had both procedures done (probably a dozen colonoscopies in my life and 1 endoscopy), but my insurance insists I must have these two procedures first before I can do the camera-pill, even though my new gastro will do the camera-pill no matter what the first two tests show. And we wonder why health care costs are out of control in America! My insurance company would rather pay for three expensive tests, than just one!
Oh well....I hope everyone is doing well out there. If it really is celiacs disease, I'll miss this forum!!! I don't see a forum for celiacs. Take care everybody!
DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed