anyone have low temperature when sick?

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map lady
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Date Joined Feb 2008
Total Posts : 154
   Posted 3/14/2008 1:12 PM (GMT -7)   
I'm having all sorts of problems right now, tired from prednisone taper, something's got my left TMJ joint all inflamed and making me writhe in agony from the pain, and I feel like I have the flu, I am shaking and cold all the time and all my muscles are really sore.  I went to the doctor to make sure I'm ok and they said I probably do have the flu but it's weird since I don't have a fever.  My temperature keeps being in the low 96's or 97's, I check it a couple times per day and occasionally it's maybe 98.1, and the doctor got the same sort of low temperature readings twice too.
I'm pretty sure I do have the flu, I got sick the day after my boyfriend came down with the flu, it's just super weird to have a really low temperature like that instead of a fever.  Anyone else ever get that?  Can it be from the crohn's?
PS - If anyone wants to, cross your fingers for me that on monday the doctor doesn't look at the MRI of my TMJ and tell me it's being attacked by my immune system.  I don't want a 4th immune disorder and I'd really love to be able to chew food again sometime soon :/
I need a bigger purse...
Lialda 4x
Prednisone 5mg
Flexeril 3x
Clindamycin 150x4
Naproxen 220x4
Darvon 100x4
Flovent & Proventil for asthma

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Date Joined Jul 2005
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   Posted 3/14/2008 1:32 PM (GMT -7)   
Sorry to hear you're having such a rough time of things!

I've always had below-normal temperatures when I'm sick. Even when I was little, my mom used to warn the nurses that just because the thermometer said 96.7 did NOT mean that I was faking it.

I've never thought to ask for an explanation...

But know that you're not alone. I've had "reverse fevers" my whole life.

Good luck with everything on Monday.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

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Date Joined May 2003
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   Posted 3/14/2008 2:48 PM (GMT -7)   
I, too, tend to low body temperature. I don't know that I did as a kid. Nor even as an adult prior to and during my Crohn's bouts. I wasn't one for temp taking. I felt okay or I felt lousy. I was sick or I wasn't. BUT - since the end of my total remission and the bouts of mild flares or symptomatic remission I've been on Imuran, an Immuno-suppressant. I was in ER w/some really rough "viral" symptoms: intermittent, traveling body aches; CHILLS, headache, queasies .... but I didn't have a temp, which the intern, resident, whatever he was commented on, the ER doctor said "she's on an immuno-suppressant, they suppress fevers."

Take that for what its worth.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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   Posted 3/14/2008 5:15 PM (GMT -7)   
My normal temp has always been 96.8 or lower. So when my temp gets to "normal" I'm really sick. You are not alone. My daughter, who so far (fingers crossed) doesn't have CD, also has a normal low temp. I think some people are just born that way. But as posted above the immunosuppressants do lower the temps too.

As far as your TMJ goes, I just saw an ENT who told me I had TMJ problems. But he just seemed like a quack to me, so I really didn't believe him. I happened to have my regular cleaning appointment with my dentist a couple of days later, so I asked my hygenist. She asked if my CD gave me joint problems. HELLO! I don't know why I hadn't thought of it. I guess because it was combined with a runny, stuffy nose and popping ears (We think I have new winter Allergies, stinks to get old). So I ran a little experiement and increased my prednisone for a couple of days. Sure enough, the pain in my TMJ went away. It had started right after a prednisone taper. I see an acupuncturist for my joints, so he is attacking those joints too now. Hopefully he will have as much luck with them as he has with my hips and knees. Just another avenue for you to pursue.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Lady G
Regular Member

Date Joined Sep 2006
Total Posts : 321
   Posted 3/14/2008 5:24 PM (GMT -7)   
I have to agree I am the same, sick or not my temperature is always low, seems that way almost no matter what, and it makes it difficult for me for sure when the doctors get my low temperatures and think nothing is wrong. to them when I am at 98 degrees or 'normal' they see it as normal of course, I see it as burning up and thats how I feel. Hopefully you get better and its just a flu that will go away.
26 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Imuran treatment with Prednisone tapering at moment.  Possible Fistula.

Regular Member

Date Joined Feb 2008
Total Posts : 298
   Posted 3/14/2008 6:09 PM (GMT -7)   
When my CD is acting up my temperature tends to drop as well. I hope you feel better soon!

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Date Joined Mar 2007
Total Posts : 900
   Posted 3/14/2008 9:33 PM (GMT -7)   
I have always had a low temperature as well...even during really bad flares. I too suffer from TMJ ....there is no worse pain in the world. I hope you are feeling better soon. Gee know, its bad enough having CD, but does it have to come with all these other makes life miserable and difficult enough as it is.....Life is really unfair....guess you have to stop and really give thanks for the good in your life, and make something good come from the bad as well. Guess we're all down here , "earning our wings"...just seems like some of us have to work harder at it than others. Oh well, tis life!
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

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   Posted 3/15/2008 12:37 AM (GMT -7)   
i have low temps too.
Co-Moderator Crohn's Forum.

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   Posted 3/15/2008 4:21 PM (GMT -7)   
I am also one that tends to have low temps when sick
My daughter is the same way ..........
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns

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Date Joined May 2007
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   Posted 3/15/2008 7:46 PM (GMT -7)   
Okay, not differ with ya'll, but I always ran hotter than average my entire life prior to CD. Normal for me was 99 - 99.5. Didn't even know I was sick until about 101. 102 even 103 was not unusual when sick as an adult. BUT for the past year after diagnosis, now I run cold -- my new "normal" is 97.5 and sometimes in the 96's. Weird!!!

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Date Joined Oct 2004
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   Posted 3/15/2008 8:13 PM (GMT -7)   
            I run below the norm too. 96-97 average. Hmm, wonder if this is a common trait for more of us?

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   Posted 3/15/2008 10:11 PM (GMT -7)   
this has come around before and many of us were pretty "cool." like others mentioned, if I get up to 98.6, i am really sick! yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

Regular Member

Date Joined Jul 2006
Total Posts : 330
   Posted 3/16/2008 7:21 AM (GMT -7)   
I'm the same way! I asked my doctor and she looked at me like I was nuts...I'm glad to see others are the same, but it's hard to convince doctor's in the ER that you're feverous when you're reaching "high -normal" temperatures. Thanks for the information,


Mary T
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   Posted 3/16/2008 1:23 PM (GMT -7)   
So glad it's not just me. One of these days I'd like to have a high tempeture so that they'll believe that I'm really sick. My norm is also around 96. something. You would think that doctors might have figured out that someone of us just don't fit the mold.

map lady
Regular Member

Date Joined Feb 2008
Total Posts : 154
   Posted 3/17/2008 3:02 PM (GMT -7)   
Is there a way to get the doctor to believe you about having a low temperature to begin with, and therefore determine what temperature should be considered as a fever for you?  I sure would like someone to believe me about being sick and having a fever!
As for the TMJ stuff, the jerk surgeon guy made me run around and get an MRI for nothing.  I literally brought him the CD of my MRI photos from the MRI center and he said he's too busy to look at it (this was at a scheduled appointment!) and I should just go to physical therapy and see if that helps.  He did not do anything to examine me at all and neither did the nurses.  I asked what the point of the MRI was and he said if the physical therapy fails then he'll be able to tell whether or not I have damage that requires surgery.  And oh by the way he's not licensed at any area hospitals that can do TMJ surgery so I'd have to see a different surgeon if I do need that.  mad mad mad    So in other words all he did was waste my time and money on two separate visits.  I just hope the physical therapy helps because I can't imagine how long I'll be stuck with my face malfunctioning otherwise sad
Oh well, at least I'm off the prednisone finally today, hopefully I'll un-swell more soon and feel better from that.  And not get another flare. ;)

Regular Member

Date Joined Mar 2008
Total Posts : 110
   Posted 3/17/2008 3:29 PM (GMT -7)   
I have had a 96 -96.7 'normal ' temp for as long as I can remember. One more thing we all have in common!
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.

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Date Joined May 2007
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   Posted 3/17/2008 4:49 PM (GMT -7)   
Hi Map Lady, I once had a discussion about TNJ (which I don't have) with my ENT Dr. and she recommended a Dentist who specializes in it. She also said to watch out for quacks because TMJ is a new buzz word. Dr.s are making money on folks who just grind their teeth. Anyway, just thought I'd suggest you look into Dentists.

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   Posted 3/17/2008 5:44 PM (GMT -7)   
My temps were always normal until the CD surfaced. Now the usual temp for me is around 96-97 also. Maybe that explains my earlier post about the freakin' chills!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.

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   Posted 3/17/2008 6:03 PM (GMT -7)   
I've had to keep the temperature in my house much warmer since CD, and I get chilled if I stay outside for more than a few minutes. I used to like my house at 68 but now I want 75 and I have still a sweater on. I'm going to ask my Drs if they know if autoimmune diseases affect temperature regulation. This seems more than a coincidence.

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Date Joined Dec 2007
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   Posted 3/17/2008 6:36 PM (GMT -7)   
Just an aside about TMJ. Fallcolors recommended seeing a dentist rather than a doctor-I would take that a step further and suggest a DDS-MD. One who specializes in TMJ and does the whole scope of treatment from NSAIDS to triggerpoint injections, mouthgaurds and surgery.

Regular Member

Date Joined Apr 2007
Total Posts : 254
   Posted 3/19/2008 3:03 AM (GMT -7)   

very weird that all of us have a low temperature....  My "normal" is 96,5 - 97.  When I have a cold and I feel I'm having a high fever, I only have 98.5!!!!


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Date Joined Apr 2007
Total Posts : 32602
   Posted 3/19/2008 4:33 AM (GMT -7)   


I have never had any luck trying to convince my PCP that is my tmp is 99 I am really sick..............I run low too in the 97-98 degree range.

Hope the TMJ is just that and not connected to CD.
Take care

Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

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Date Joined Apr 2005
Total Posts : 14995
   Posted 3/19/2008 6:27 AM (GMT -7)   
Me too always have a low temp. Can't say that its related to just us Crohnnies, because as you can see Kitt who is the wife of Crohnie runs a low temp too. Hey Kitt, maybe you have a low temp due to your association with us Crohnnies:) Kind of sympathy low temp. HAHA!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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Date Joined May 2003
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   Posted 3/19/2008 9:26 AM (GMT -7)   
All of you, when you get chilled, do try a cup of something HOT to drink as well as your other "treatments" for the chills. A hot drink really does go quite a way to raising your inner body temperature thereby assisting your other warming up methods.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Regular Member

Date Joined Apr 2006
Total Posts : 84
   Posted 3/19/2008 3:12 PM (GMT -7)   
I've noticed that when I have a bad day with the Crohns that I get very cold.
This will only last a few hours though.
I just try to keep warm when this happens
Diagnosed June 2005 with Crohns (left colon, large bowel)
Diagnosed Osteopenia Feb 2006
Jan07 Arthritis noticed in hands, not too bad yet
Crohns Arthritis Diagnosed January 2008
Remacide started March 2007, Developed anti-bodies Jan 2008, Remacide stopped Jan 08
Asthma since childhood
changed my style to silver
changed my clothes to black

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