Hi everyone! I am relatively new to the post but I cannot thank you enough for all your threads and posts. I have really learned a lot, in a very short time, from this site.
I was diagnosed with Crohn's two years ago. I have been lucky to have had only two flare ups since that time. However, this current flare up has been relentless and has had me out of work for almost three months. I have been on Pentassa, which gave me horrible cramping, Prednisone which just provided horrible hot flashes and headaches, Enticort that left me virtually sleepless, and now 6mp.
After telling my GI that I have had it with the "Let's try this drug and see what happens" approach, and that I wanted to pursue the surgery route, he scheduled me for a CT enterography and an appointment with a surgeon. During my consult with the surgeon, who had the results of the CT, he told me that the Crohn's had significantly progressed in the last two years (since my last CT) and that the left half of my colon would have to be removed. He recommended that I try Remicade instead of surgery but understands my frustration and desire for surgery. He suggested talking to my GI again (who is on vacation).
SO, here are my questions:
I have been told that 2/3 of Crohn's patients, who elect surgery, have it recur. Does that seem accurate? I have heard a lot of success stories but have read a lot of reoccurance threads here online.
Has anyone had that much of their colon removed at once? I'm guessing, 'yes', but the thought of it scares the beejeezus out of me.
Does insurance pay for Remicaid if I have just started 6mp??
Does Remicaid work, and if so, when do you start feeling the benefits?
Also, if I am on 6mp and Remicaid, then the results are not good and we decide surgery is best, wouldn't those drugs compromise my immune system and surgery would have to wait??
I think that is it for now. I really appreciate any feedback you could provide. Thank you!