My stomach hurts but I've only been dx'd for my ileum

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Cyborg Ninja
Veteran Member

Date Joined Jan 2006
Total Posts : 660
   Posted 3/20/2008 4:29 PM (GMT -7)   
I'm afraid to tell my doctor. I'll tell her, and next thing I know I'll be getting a three foot scope shoved down my throat. I've noticed a correlation with me stopping my medication and my stomach and lower-right abdomen hurting. I'm pretty sure the stomach correlates with the Crohn's. I've been really anemic for some time now, and right now my hemoglobin is low but my iron isn't. I threw up once and it looked like blood, and I hadn't eaten anything that day that even appeared red in the slightest. I'm worried my stomach has ulcers and is inflamed. Could there be any other correlation with Crohn's besides the disease actually extending to it? My medication is Pentasa btw, so it wouldn't stop ulcers in the stomach directly, but perhaps reducing inflammation elsewhere in the body reduces the immune system response all over.
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, syringomyelia
Dear admin: ASP sucks and so does formatting in tables!

Regular Member

Date Joined Sep 2007
Total Posts : 246
   Posted 3/20/2008 6:55 PM (GMT -7)   
i think it wld be best to go to your doc,i use to get stomach pain but that was just reflux.but vomiting red stuff aint gud.and if you leave it it could way worse etc.Gud luck
dx 17 aug 2007
20 yrs old
23 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed  100mg azamun

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/21/2008 9:52 AM (GMT -7)   
Many of us with Crohns also suffer with GERD. I take Prilosec for it. I would suggest you being honest with your doc and see whats going on. The upper endoscopy is a very easy test to do. Nothing after midnight is the only prep and you are sedated like the colonoscopy so don't know whats going on.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 3/21/2008 10:02 AM (GMT -7)   

Cyborg Ninja

I understand your fear but it is more important to tell your Dr. the truth about your health so he/she can make the determination if something is seriously wrong.  Be brave, you can do this.


Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Veteran Member

Date Joined May 2003
Total Posts : 2481
   Posted 3/21/2008 4:11 PM (GMT -7)   
crohn's can affect anywhere from the mouth to the anus. I mostly have it in my terminal ileum too, but sometimes I get it in my mouth, duodenum, rectum. It's pretty common.

Regular Member

Date Joined Feb 2008
Total Posts : 165
   Posted 3/21/2008 8:09 PM (GMT -7)   
My CD is in my TI also and my stomach hurt every day. I did not want to wear jeans or not even elastic due to the pressure. Then I went on Entocort and the pain went away. I'm due to go off the Entocort soon, so I hope the pain does not come back. I wish I would have gone to my r long before I ended up back in the ER. Kay

 I Love MY Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa and now Entocort.    

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