I know i have not been on much since my surgeries but I am still in pain and my GI will have me go for another MRIE if the pain is still evident at the anastamosis site in mid april since my Sx was january 11. My joint pain and abd pain came back while I was waiting for the wound infection to heal and was able to begin Hunira again Feb 27th. The last dose for me before that was Jan 4th. My GI placed me on the normal 1 shot every other week post op ...pre op I was using 1 shot a week. I saw my GI 3/17 and he noticed how tender the area was. I also informed him that using the questran some days would seem to work others it wouldnt so he told me to stop. I have severe pain when I take Iron pills but it doestn stop the D. I figured I would have less troubles with hemmies with all the D that I have now as opposed to the C I had before my 4 surgeries.
Before this last surgery in Jan my surgeon looked at my anus after I was telling him of discomfort...I never had an external hemmie that had not bled before and when I did it barely bled and I would use the script beta val and it would be gone in a cpl days. I informed him of the burning etc when I saw him on 3-11 and he gave me a sample of recta gel but told me to just use it topically and not as a suppository as it is meant for...the recta gel is a gel of lidocaine and cortizone and for you ladies who have used yeast infection cream you know the plunger I speak of that is what they give you to use this med as a suppository....I cannot imagine using a rectal suppository that isnt tapered at the insertion end.
I think I have new hemmies there I was putting some of the gel on topically and it felt like there were extra enlarge folds, in the mirror they are the same color as the surrounding tissue. I also have a sensitive area a little further asway from the anus but still at least within half of an inch or so from the anus. It seems tender to the touch when rubbing the gel on and seems like it may feel like vein beneath it. I know what veins feel like that are really full of blood from my days as a vet tech and drawing blood from many diff veins on an animal...never near the anus obviously but enough to make me assume this is what I am feeling but with all of my complications I have had I fear that it could be a fistula forming. I have only had 2 types of fistulas the 1st was intestine to intestine which was discovered only when I was opened for emergency Sx the second type was enterocutaneous at my belly button...well so close to it that my bellybutton now resides in a jar with the fistula affixed to one side of it in a jor with formalin in the pathology dept at the hospital I was in. I began having abd pain in late february and was still recovering from a wound infection so I was unable to begin back on humira asap I began it but at the traditional dosing 1 every 15 days before Sx I was doing 1 shot each week and I noticed a big change in fistula output, size and also helping my joint pain. I talked to my GI the 17th while there and we determined that I need to do the shot every weeek again which has helped my joints and my belly somewhat but still bad pain and it is the type of pain I had until the fistula came through and finally relieved pressure by comeing to the surface having the abscess pop followed by drainage of the feces
I am so scared that it will be another fistula either that or an abscess that is just festering. I watch for fever etc and there is noe but I think I have a right to be afraid
PLease let me know what you think
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987