Posted 3/28/2008 7:49 PM (GMT -7)
I have CD in the duodenum (thanks for the spelling Sarita), still can't pronounce it. I get pain as you described. I haven't had any there since my GP started me on Nexium 40mg per day to control my overactive stomach acid production! I agree with CrohnieToo, transverse colon. Even though my CD has not showed there on any tests. When my inflamation is high or when I eat trigger foods that is where I get my most intense pain!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.

Posted 3/29/2008 10:06 AM (GMT -7)
I have been having pain there for a few weeks now, too.  Right below my ribs.  My GP said it's probably a reaction in my stomach to the pred.  I have been on it since I was diagnosed in January.  I have been taking nexium once a day with the pred to counteract that.  She told me to increase it to twice a day and now the pain has been going away.  although, yesterday was also my last day of pred!!  YIPPEE!!  So, if that truly was the cause it should really be getting better!!  Keep me in your prayers that it will stay that way!!!  tongue Last time I only made it down to 15 mg before the pain came back.  This time I have made it all the way off the far so good... 
Diagnosed with crohn's in January 2008! 
Currently tapering on Prednisone and on Pentasa 1000 mg 4 times a day
On Topamax twice daily for migraines
On nexium while on the prednisone (have been previously diagnosed with ulcers)
I am 27 years old and have been married for 2 years.  I cannot wait to try to have children so I want to get this under control!!

Posted 3/29/2008 10:39 AM (GMT -7)
Hi !
Sorry to hear you not feeling well. I have what sounds like the same pain, I took a while for the doctors to find out the cause. When it got really bad I ended up in the ER.
After some blood tests they found my {amylase and lipase} very high, which indicated {pancreatitis} brought on by a crohns.
Hope you feel better.

Posted 12/6/2008 2:45 PM (GMT -7)
Koltron,  Did your lipase and Amylase levels remain high?  What was your treatment?  How about follow-up?  My 15 year old son just got out of the hospital for treatment of Pancreatitis for the second time.  He has Crohn's.  They have taken him off some of his Crohn's medications thinking they were irritating his pancreas.
Posted 12/6/2008 7:01 PM (GMT -7)
hi! i have had the same pain. I went to my doctor and he said that it sounds like I have an ulcer. He wanted me to have the scope test, the one where they put the scope down your throat and look in your stomach. I havn't had it yet. I will probably have it during the christmas holidays. My stomach will hurt after I eat or dring something. It did ease up a little bit but it's starting back again. I just went to him last week. hope you feel better. I feel okay until it comes back....
Posted 12/8/2008 9:30 AM (GMT -7)
I was having a horrible pain in the same area this summer. I had a SBFT and the doc said I was flaring and put me on Imuran after one Remicade infusion (to jump start the Imuran). The pain went away within a few weeks.

It was an AWFUL pain - my prayers are with you!
35 year old female (newly married) - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Zoloft, Seroquel & Ativan as needed

Posted 12/9/2008 8:17 PM (GMT -7)
V. Susie - This is an old thread not sure if they will respond or not. But my amylase and lipase were elevated around the time of having really bad paid in this area. They said it was me having a flare and put me on some Prednisone.

On a separate occasion, my doctor also had me stop (not taper) entocort to be replaced by prednisone due to other pains. All of sudden I had the worst pain for days off an on in the same area. I think not tapering was a bad mistake as it made the pain worse.
Posted 9/9/2015 9:48 PM (GMT -7)
Hi everyone, I also have pain 3" above the belly button and I had surgery six months ago. I had two ct scans and it showed there is inflammation and a narrowing of the ileum. I have three feet left the surgeon said. Does anyone have a feeling of pulling in that area and when you start to eat you get the pain. My GI said the digestion starts as soon as food enters the mouth. It also showed on the ct scan that the jejunum has moderate dilatation most likely secondary to adhesion. I am on Pentasa, and my GI wants to put me on Mercaptopurine, is anyone on this medication? I looked up the side effects and they are really scary. I am new to this site and am so glad to be able to connect with people with the same conditionl. I have had Crohn's for 52 years. It's been a big battle, exploratory, and 3 small bowel resections.

Thanks for listening and stay well!
Posted 9/10/2015 3:59 AM (GMT -7)
I am on Pentasa, and my GI wants to put me on Mercaptopurine, is anyone on this medication? I looked up the side effects and they are really scary.

Pentasa is useless for Crohn's, I would go on 6MP (that's the mecaptopurine). The serious side-effects are rare, and you should be monitored closely for the first 3 months with frequent blood tests. That said, if your narrowing is caused by scar tissue or kinking due to adhesions, no med will help with that, I'm afraid :/ But if it's caused by inflammation, then the 6MP should help. The main downside is it takes about 3 months to start working.

I hope it does help. You deserve a respite after 52 years..... :/
Dx Crohn's in summer of 2000. (Yay skull)
Tried and failed: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, various diets.
Had surgery Feb '13 - subtotal colectomy with end ileostomy. First thing to put me into remission in 13 years.
Had second surgery 10th July '15 to reverse the stoma and connect the ileum to the rectum. Feeling rough.

Forum Information

Currently it is Saturday, November 17, 2018 4:50 PM (GMT -7)
There are a total of 3,020,677 posts in 330,475 threads.
View Active Topics

Who's Online

This forum has 162307 registered members. Please welcome our newest member, southern susie.
201 Guest(s), 5 Registered Member(s) are currently online.  Details
mattamx, GoBucks, “Geaux Tigers”, mitchden4, beatUC