New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Sep 2007
Total Posts : 160
   Posted 3/26/2008 2:01 PM (GMT -7)   
Ok been off methotrexte injections now since november doing ok for now regarding the crohns as for the underactive not doing so well sad ive now had 2 doctors who have written a letter to my consultant explaining my circumstan ces and that i would prefer to go down the oral route the letter was faxed on the 10th no reply not entirely sure what to do now my consultation appointment was for the 4/4 received a letter last week saying my consultation app was cancelled due to lack of staff it has not been resechuled until june im doing ok for now but for how long will it continue ive not been in the hospital for over a year now not sure whether to arrange another appointment with a doctor and ask for another letter to be written or wait until my consultation appointment help please!

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 3/26/2008 8:04 PM (GMT -7)   
Hey angel - sorry you're having a rough time. I wish I had a good answer for ya, but to be honest - I don't really understand everything that's happening in your post! I don't know what the "oral route" is....are you talking about being scoped? And "the underactive" - do you mean like fatigue... feeling tired all of the time? And what kind of doctor was the consultation with? Help us fill in some blanks, and maybe someone will jump in with some good advice. Good luck to you in the mean time!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

Regular Member

Date Joined Sep 2007
Total Posts : 160
   Posted 3/27/2008 5:46 AM (GMT -7)   
ok ill elaborate because of all the other problems going on in my life right now i opted to go down the oral methotrexate road my doctor at the time faxed a letter stating the problems i was having with my periods and various other issues and that it would be more convenient for me to try the oral methotrexate i was also having problems with the ward!things just were not going to well at that time.
I then saw another doctor 2 weeks ago still no reply from my gastro consultant so i asked him to fax another letter called yesterday the same again no reply!
my crohns appointment should of been next tuesday but was cancelled due to a shortage of doctors it has now been rescheduld to june im at a loss do i keep pestering the doctors or do i wait until june.
As for the underactive thyroid i just feel so tired all the time and i ache all over gone from feeling crap from crohns now crap from the underactive thyroid!i just generally ache all over now but being really careful with what i eat because the only medication im on for my crohns is!
coedine phosphate
folic acid
required for pain relief,diahorrea,nausea,side effects from methotrexate.and thyroxine for underactive thyroid other meds include salbutamol for my asthma,menefemic acid for periods and anti depressents.Idont want to keep stalking the doctors either but then again im concerned about my crohns right now! 
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, January 22, 2018 2:56 AM (GMT -7)
There are a total of 2,919,959 posts in 320,395 threads.
View Active Threads

Who's Online
This forum has 159438 registered members. Please welcome our newest member, Fritz777.
385 Guest(s), 2 Registered Member(s) are currently online.  Details
Hopeful86, testuser1234