hi all As many of you know I have had 4 CD related Sxs since 2-07. I had a temp ostomy then had it reversed in 6-07. The CD remanifested in my colon (the ostomy Sx was due to emergency resection complications which was 1 week prior). In 9-07 i had an enterocutaneous fistual break thru the skin. After trying all other methods to fix it another Sx was needed it was 1-08. I had post Sx compliocations (lieus again which is what gave me the ostomy the 1st time but it was caught fast enough to just get me an NG tube for 5 days.
I now have 1/4 of my large bowel and have been having pain recently whereas even 1 month post op I had no pain at the anastamosis site it was limited to the wound infection pain. Ever since the first BM I passed post op and all the gas since this last Sx the odor is so foul and I cannot place it on anything imparticular. I dont recall having such a foul odor after the other surgeries including when I had the ostomy bag to empty...granted I used m9 drops when I had that but I had 6.5 months after the reversal until this most recent Sx
I cannot pin it on any particular food since this has occurred even while on the hospital clear diet. When I have a BM the odor lingers for a minimum of 1 hour but usually 3 hours. Luckily I was approved for SSDI so I am usually at home to use my own toilet. When I go it always is accompanied by lots of gas or it blasts out of me.
I knwo the D is normal post op but what about the odor?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987