Information needed on behalf of a Friend

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Veteran Member

Date Joined Dec 2005
Total Posts : 1782
   Posted 4/1/2008 10:35 AM (GMT -7)   
Hi's been quite a long time since I've popped over here.

I have a friend who has diverticulitis. She had a very bad spell recently, but apparently that is under control. For quite a while now (since her recovery from the diverticulitis attack), she has been experiencing gas coming from her vagina. No stool, but there have been flecks of something and mucous not vaginally related. She finally got in to see a GI yesterday and they've scheduled a c-scope in the next couple of weeks. She has to urinate frequently and the gas is just as frequent (and quite embarrassing).

I'm thinking r/v fistula. Am I on the right track? What information can I arm her with to convince her GI to take her a bit more seriously (he didn't think she needed to "worry" about a fistula or fissure)? This is out of my area of information as I didn't have this to contend with. We all know what happens when we try to find out what's wrong with us via the internet and I'd like to help her get the facts. She has lost a considerable amount of weight. The only thing she can eat right now is an extremely high fiber diet (for the diverticulitis). If she eats anything different, she has diarrhea.

Does this sound like an R/V fistula to you? Crohn's? Can you point me in the right direction? Any help is appreciated. I'm really concerned about her. wishes to all.

Some days you're the bug, some days you're the windshield

RA, AS, intolerance/sensitivity to gluten, wheat and dairy.

Started Humira 1/17/08, also currently taking .7ml (17.5 mgs) injectible Methotrexate weekly, 2 mgs Folic Acid daily

Regular Member

Date Joined Feb 2008
Total Posts : 31
   Posted 4/1/2008 11:20 AM (GMT -7)   

Sherree,  Sorry to hear about your friend.  I am not a doctor, but have had crohn's for a very long time.  Initially was diagnosed incorrectly.  Since I have had several rectal fistuals, I suspect that your friend probably does have crohn's, not diverticulitis and she probably does have a r/v fistula.  I have found out the hard way that taking your doctors word about your own body sometimes only gets you to a worse place.  If I were her, I would insist that my doctor check for this, or get an appt. with an OBGYN and have everything checked out. 

I am now with a very good GI doctor and my PCP is also wonderful, but, I still ask alot of questions.  One of the questions my GI always asks when I'm in for a checkup is have you peed (sp?) air and that question alone makes me suspicious about your firends problem.  I don't know wheter this helps at all, but I will hold your friend in my prayers.  Let me know how things go.


Diagnosed 1972 with UC (12 years old); many flares over the years
1994 had my son and became very ill; took 4 years to get the correct diagnosis.
PCP diagnosed with IBS and was down 70lbs. by the time I insisted on seeing a specialist.
1997 Diagnosed  with Fistulizing Crohn's
1998 had 1ft. of small intestine removed including terminal illieum, have had constant diarrhea since.
Currently taking imuran, prilosec, synthroid, zoloft, xanax & B12

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 4/1/2008 12:14 PM (GMT -7)   
The pouches of divert. show up on scans and scopes, so I wouldn't question that diagnosis. But it certainly does sound like she has a r/v fistula. Hopefully the c-scope will confirm some things for her. And then she can get on to a treatment plan.

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 4/1/2008 1:11 PM (GMT -7)   
I had a fistula to the bladder. My doctor said that diverticulitis can cause fistulas. In fact, that is what he thought I had (90% diverticulitis, 5% Crohn's & 5% cancer) until they did surgery to repair. I was in the 5% category, Crohn's. So I guess you can have fistulas with diverticulitis also.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (27) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Veteran Member

Date Joined Dec 2005
Total Posts : 1782
   Posted 4/1/2008 3:19 PM (GMT -7)   
An Update:

She apparently has a UTI and her GI prescribed a 3 day course of Cipro. Isn't Cipro prescribed for fistula's? I'm trying to remember if I read this eons ago, but... Also, she tried to get into see her ob/gyn, but the wait was longer than for her c-scope. I wish I could point her in some sort of direction regarding this. This just wasn't my territory, so to speak.

Some days you're the bug, some days you're the windshield

RA, AS, intolerance/sensitivity to gluten, wheat and dairy.

Started Humira 1/17/08, also currently taking .7ml (17.5 mgs) injectible Methotrexate weekly, 2 mgs Folic Acid daily

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 4/1/2008 4:09 PM (GMT -7)   
ok gas thru the va jay jay is definitely a rv fistula, if the gas isnt making it to her bottom, its coming out of her vajay jay first. I can tell you now that most ob/gyn's do not know how to treat rv fistulas. Cipro can be used to treat, thats what im on now, but only b/c i had nerve issues w/the flagyl...which is what they prefer to treat it with. When my doc (gi) thought i had the rv fistula he recommended me to the surgeon, but i also have crohns of the rectum so i have recurring fistulas and absecces
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

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