Trips to the ER can be so much fun, can't they? I totally understand where you're coming from, as I just went through a similar trip myself.
When I have infuriating trips to the hospital (which are most of them anymore), I try to remind myself of a couple of things.
1. Most doctors and nurses in the emergency room DO tend to deal with a lot of idiots. They have lost their "detection abilities" at figuring out who is an idiot, and who isn't. Therefore, by the simple fact that you are in the ER, you are treated the same as the man who busted his head
open because he's falling-down drunk.
2. Most doctors and nurses HATE IT when a patient arrives with a disease or condition that they are unfamiliar with. For us crohnies - that's most doctors and nurses - most of the time.
3. If something goes wrong or some mistake is made relatively early on (ie them trying to give you the wrong nausea medicine), pride requires that they ACT like they know what they're doing regardless. I had a very nice nurse once, who I thought was just drawing blood, but then I realized after she stuck me with the needle that she was inserting my IV into the inside crook of my elbow. I tried to explain very nicely to her that it was a painful spot for an IV to remain for any period of time, and that if I fell asleep with my elbow bent it could cause problems (as it had in the past). From that point on she was the opposite of nice. My blood pressure rose accordingly.
4. The ER's sole purpose in life seems to be rushing you OUT of the ER. If you're not dying of blood loss or some other obvious wound, they're often just going to give you a bottle of vicaden and send you home. (This is the exact conclusion of my last two trips)
I realize that I'm making terrible generalizations here, and that not all docs, nurses and hospitals are like this. I HAVE been to good ERs, and seen good doctors and nurses. They are just few and far between. I used to live 5 blocks from a major (Barnes Jewish) hospital, and I would still drive 30 minutes out into the county to go to their "West" branch, because the ER was sooooo much better there.
I understand your frustration Zanne - really I do. The only helpful advice I could offer would be to find out what hospitals your GI is "on staff" at. If he, or anyone else in that practice that you're comfortable with, practices out of any other hospitals - perhaps you could try a different ER. It sounds silly, but sometimes it makes a huge difference. My last GI office had someone at almost every hospital in the bi-state area... so I had my choice of where to go, knowing that I would still be receiving care from someone with MY records at MY practice.
Best of luck to you... I know the waiting game sucks.
You'll be in my thoughts today.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered.
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."