Oh boy, spring is here and time for all the flares to start.

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Date Joined Feb 2003
Total Posts : 15314
   Posted 4/14/2008 6:28 AM (GMT -7)   
Well, many times true to his word, my gi calls cd his seasonal disease, because we are always at our worst in the spring & fall. He said when he first started noticing this yrs ago, he kept track of things. His admission rates is much higher than normal. He always looks exhausted during this time of year because he has so many sick patients in the hospital with bad flares.
I went to bed last Sunday nite not feeling so well. I really woke up Thursday evening with my daughter at my bedside trying to get me awake. I was a mess when she found me, so she got me in the shower & cleaned up and got all the bedding  changed. Bless her heart, she really goes the extra mile with her Mom and she is a real trouper about it. She demanded I sip some tea, she found some kind chicken nooodle soup, I hate chicken including chicken broth. Then she got some Tylenol in me and some Zofran. She finally gave in to some watered down 7up. I was so dehydrated and little hen thought she could bully big hen in to a ride to ER. I agreed to go if I started the dry heaves again. As it was my reg appt was Thurs w/gi but I was in bed out of my goard, so missed it.
She has seen so many not so nice things happen to her mom, like her walking into the surgery room in Mexico in the middle of my surgery, said it looked like a war stricken temporary makeshift hospital. Then she got to witness 2 drs and 4 what she calls hoochie mamas carry me down 2 flights of stairs on this skinny board thing cause the hospital does not have an elevator that is big enough to hold a gurney. She said that was actually scarrier than walking into my surgery. She was terrified they would drop me and she said they had all kinds of crap piled on me . Glass bottles laying on the bed, what a site.
Currently still feeling like hammered doodoo. Running a low grade fever so staying with the tylenol, taking my Bentanyl for the cramping, helping some but having alot of lower stomach pain in the area where my new friend named Fistula came through. Have done a round of Flagyl and 1 Remicade treatment. I am really hoping the Remicade did not knock this thing full blown. I say this because when I was on Remicade for such a long time, my infusions were every 4 weeks and somtimes he would do it every 2 weeks kind of as a booster. By week 4 symptoms started returning. My case of the trots were short lived because I had not been eating before this hit, no appetite, just felt lousey. Oh, hate the dry heaves.
Gen do not let that dr of yours tell you that you are not in a flare. How the hell doeshe know, has he had one!!!! Sorry to whine and vent, but I sick and tired of being sick & tired. Hugs everyone, Susie

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 4/14/2008 6:51 AM (GMT -7)   
Ya got me with this straydog I firmly believe this too
I know I am taking a med for no smoking but I wasnt feeling greatest prior to starting and now am in the beginnings of a flare started last night
Tell your GI my doc agrees totally thanks for posting this I am sure many will agree
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns

Regular Member

Date Joined Oct 2007
Total Posts : 241
   Posted 4/14/2008 7:38 AM (GMT -7)   
i am new to this disease and it is really helpful to hear that things are worse in spring and fall. i was doing fairly well after my 6th remicade infusion, and actually had 6 days of feeling well. i was so happy to have my life back. i was on 5 mg of pred and actually felt like exercising to lose some of the 20 pounds that i have gained since my diagnosis a year ago. then, 2 days ago, wham- pain, fatigue, joint pain, low grade fever. the weather was unusally rainy and cold, and i am hoping that it is only a temporary setback, but now i am back on high dose pred and so bummed. it is so hard to be positive with daily pain. it gives me hope to hear what others go through, and to hear that others have some of the same issues that i do. don't you love it when an expert tells you that what you are feeling isn't real according to science? who knows flare better than one who is having one? we have something to compare it to- i have yet to hear of a GI doctor who has  crohn's, and since i am in the medical profession, i know a lot of gi doctors. thanks you gys for being there.
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