tlw-I just wanted to let you know that I recently had to come to the decision to have a proctocolectomy due to Crohn's and it's complications.
Over the years(20+), I have had resections, been on all the meds, spent alot of time in my house, never travelled, had a hard time working and was just miserable. Then, after complications during a resection, had to have a temp ileo. I have to say it was the best thing to happen to me (even though I didn't know it at the time). And, because I say that, I had it reversed the minute my surgeon would let me. It wasn't more than a few months that I called my GI (at the Cleveland Clinic) and told him I couldn't live that way. Again, another surgery and another temp ileo which turned into many years of FUN!! I could leave my house, go shopping, out to dinner, visit with friends and go for walks. I never worry about bathrooms or traffic!
Then, even after that, I started to have more fistula/colon problems. It wasn't a hard decision for me to take the last step, but what I want to say is that it is not the end of life. I was very lucky that I didn't have anything serious happen that sent me to the ER, my dr's told me what my options were and let me make the decision. I will add that I did put it off for a little while...and because of that, my recovery took a little longer.
If you are having reservations, take a "lurk" over on the ostomy site. There are some great threads that might help you.
Good luck to you and your decision.