I am new to the group, but can sympathize with all of you. I am one week post-surgery. I had an ileo-cecal resection in which 12 inches of bowel was removed and 2 fistulas were repaired. I have had Crohn's since I was 14 and this was my first surgery. The stricturing was so bad that I couldn't avoid obstructing.
I know it is only one week, but I feel like I have been hit by a truck. I can eat and drink, but going to the bathroom can be an adventure. I am so sore. I made the mistake of coughing over the weekend and was blinded by the pain. I am walking around, but it doesn't take long to get tired and very sore. Getting very frustrated. I just want some of the pain to ease up a little. How long are people finding it takes to get some normal days ? Is it really 4-6 weeks ? Granted, it feels better than a crohn's flare, but it still hurts.
Thanks Nanners !! I am trying. Its just so easy to freak out over every pain I feel. I get so scared of what could be going on in there. I can't wait for that magic morning when i wake up and feel like me.
Diagnosed w/ Crohn’s Disease March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)
Diagnosed w/ Fibromyalgia May 2007 also on Soma
Also have Arthritis, and feel like I am falling apart sometimes...
I hear ya. I was up walking the day after and got myself out of the hospital 4 days later. I just wanted to be home with my girlfirend on my couch. Roomates and the vital signs every 15 minutes don't allow for much sleep. The post-op pain is just so intense. Very sore. They gave me oxycodone for the pain and like you, I try to use as little as possible. They are mad at me for that too. It is a catch 22, the more narcotic you take, the more constipated you get. Constipation is not something a CD patient wants to hear. So, I am grinning and bearing it. In all, as bad as it is, it is psychologically and physically more manageable than a Crohn's flare. I was flaring every two weeks while on prednisone,so there was no choice as far as surgery goes. I agree, the Drs made big claims to me too about what surgery would do. I was told to expect a great quality of life and that I will wish I had done it sooner. I am a realist, so I haven't gotten my hopes up. I am sorry to hear you are vomiting. It is depressing, I know it all too well. As far as hearing good news, I feel ya. Its been a long time since I have heard good news. I experienced a 5 year remission as a teenager and have been waiting for it again. Now at 29, I am just so tired of working to accomodate this monster. I have a lot of support, and I am not going to let CD win. I refuse too. Hang in there, others say it is at least 6-8 weeks before you feel better after surgery. I trust the people here more than the docs on that one. Take care.