Posted 4/19/2008 9:08 PM (GMT -6)
Thank you all for the replies.
Ivy, what I was really looking for was living with a colostomy. The TPN idea might not be a bad one. We still have some time to think about it. I will go with her for her follow up visit with the surgeon. Since the last fistula surgery, I have only spoken to him on the phone when he called the waiting room to tell me how the surgery went. That is when he told me about the inauspicious findings.
Rox did seem to feel a little better today. She went to work. Lots of arthritic type pain, though. Yes, I do think she is tired from the struggle with the Crohn's crud. I am doing all right, thanks. I am so accustomed to living with people who have chronic illnesses but, for some reason, I never expected one of my kids to become ill. They were both always so healthy.
She has no problem living with the Setons. Better than feeling sick from the infection.
Chroniemom, she cannot tolerate Flagyl. She was prescribed that recently and she gave it a good try. She took it in the past and said she could not do it again but she did try it one more time. Unfortunately, it made her pass out several times, in addition to the nausea and general malaise. She had to stop.
Rosie -- yes, I am very used to fighting insurance companies. I am a nurse in a doctors' office so I have been fighting them for patients for a long time. With the exception of the current Humira problem, my insurance company has been as good as I could ever expect. I definitely don't know the solution to health care woes in the US but I think most people agree that there need to be changes.
I can somewhat understand the need to manage medical costs but I know that physicians do not prescribe Humira or Remicade lightly. My daughter, like many other people, failed many medications before she was prescribed Remicade. In fact, she was down to one hundred pounds, on TPN, and still having bloody, watery diarrhea on sixty milligrams of IV Solumedrol before she was finally given Remicade. I mean, people have to jump through some pretty painful hoops to get to the point that they have to have Remicade or Humira.
Sorry for rambling on but insurance company frustrations naturally lead to that.
Thank you all.