I will be having my first crohns related surgery in less than two weeks. I have been diagnosed since 2000 with many flares, hospital stays , lost time from work and way too many days just lying on the couch with no energy. I have been on pentasa, asacol, predisone( too many times), remicade, imuran and am now on humira every other week. I am getting a lap resection of the terminal ileac and cecum. I have so many worries, although I have been sick for 8 years this just seems so much more serious now. Can You guys help answer some questions? Here they go:
1. How bad is the pain post-surgery and what will be my med options?
2. How bad will the scar be?
3. How long out of work?
4. how musc of a chance for complications?
5. has anyone experienced the new normal I am hoping for after?
I am a nurse so that makes me overly worried because I have too much knowledge of surgery horror stories. I am making myself sick with worry. I wish I could have had emergency surgery so I would not have had tome to do all of this stressing first. I am a married mom of 3 and I just hope to be able to take my kids to the beach this summer, pain free. I know there is no cure for this GROSS, SUCKY, LIFE-DRAINING, HORRIBLE, CONSTANT PAIN IN THE --- DISEASE WE CALL CROHNS, I just would love a little break.
Even with all of my whining I realize it could be worse like cancer, a tumor, HIV or other diseases. So I count two blessing for everytime I vent about my situation. It would be nice to meet some friends who understand. I am the only on I know with this. Gets kind of lonely and I am tired of being the friend with ISSUES. Thanks for letting me get this out. I look forward to making new buddies on this site.