I wish you the best of luck, Red! This is such a frustrating position to be in! Sounds like you are having a hard time getting diagnosed as well, Navy.
I have seen an Internist, a GI, and a Rheumatologist and I get to have a small bowel follow through done tomorrow and see a different GI for a second opinion. That does not include all the eye doctors I have seen for the past year for eye inflammation that will not go away and stay away.
Despite me having ulcers in my TI and inflammation in my colon, my current GI is looking for hard core proof I have Crohn's. Honestly, I don't know if the additional tests will show anything or if a new GI will think any differently. On the one hand, I want an answer but on the other, I would love to believe that nothing is wrong.
Hang in there and keep us posted!