I have had CD for the last 20 years,from age 14. Those first 4-5 years were the hardest ,was in and out of hospital regularly, almost had my whole colon removed at one time, things were quite bad.
Luckily surgery was never an option for me in my treatment as my DR considered it a last resort measure because of the severity of the disease (whole large bowel as well as 30cm terminal ilium),I still remember his words (if we operate we take it all out).When i left the teenage years my relapses became less frequent, 3 relapses in my 20's another one 4 years ago(i consider a relapse to be anytime i need to go on steroids). Though to be honest i tend to have a lot of symptoms even when in remission(mainly the dreaded D and also lack of control),these symptoms really put a damper on your confidence,and most days don't want to leave the house.
The longest i was in remission was about
5-6 years, and getting treatment sooner is always better than later.
I think that as you have the disease over a long period the chances of developing complications are greater
(fistula,abcess,strictures)etc. Everybodies disease is different, my personal view is that there are numerous causes for CD in different people,the DR's just conveniently bunch them together under the name CD( when a DR sees inflammation in your gut it's either CD or UC ,and many times they get that wrong too)
Good luck, God bless
Hi I'm crohnie_boy
33yr old boy . Diagnosed @ age 14 ileocolitis crohn's.
Taking Pentasa 1500mg twice daily
Try to keep smiling ,but hard sometimes