Hi , i am new to all of this and from the UK, but i can very much relate to your situation.
I too struggle with my diet and dread being weighed by my consultant, i am currently around 170 meters tall and currently just under 125 pounds....although not quite sure about that.
I think that mentally you have to get a grip on this disease, when you have done that, the physical i have found becomes much easier to bear. I have "safe" foods which i am generally ok with, mostly very bland, plain and boring food, however you cannot always fight against the physical effects of it and you sometimes may have to accept inability to do certain things.
take things slowly, do things when you are comfortable with t