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Nana CC
Regular Member

Date Joined May 2007
Total Posts : 121
   Posted 4/22/2008 3:20 PM (GMT -7)   
confused  I'm sure I'm not the first so hopefully some of you can help me with this. I was here last year about this same time with a new diagnosis of Crohn's. Well I moved here to central Texas shortly after being diagnosised and spent the next 3/4 months trying to find a doctor as good as the one I had in Indiana. I was not able to do so and getting my pain treated here was a joke, Lortab 5/500 was all anyone wanted to give me when I had been on percocet in Indiana. Well around Nov I was finally tired of all the BS and no one being able to tell me why I felt so bad if everything looked good, so I got in an argument with my GI doc and decided maybe I was misdiagnosised. Took myself slowly off all my meds and actually felt more like my old self than I had in a long time. I was even keeping things under control with a fiber pill and an occassional stool softener. I went back to work in Feb after being off for about 3 months and guess what. The LLQ feels like someone is wringing my colon out. First it felt like a full boil feels and now it is more difuse but is very painful. This has been going on for about a month now along with all the mucous and the big D. I went to see a new gastro doc (found out he doesn't treat C) who is ordering a CT, blood test and take it from there. At first he wanted to stick me on some steroids right away and when I told him I really didn't want to have to go back on all the stuff I was on due to feeling so bad he agreed not to start it until all the testing was done and he got me in with a doc who could treat me. I ask him for something for the pain and of course he said no. I DO NOT WANT TO GO THROUGH ALL THIS AGAIN!!!!!! I've already changed my diet back to the stuff that was suggested last time, I think it might be the stress of my job that brought it back. Or is this the way the disease works. I don't know what to do, I work with hospice and even talked to one of friends there to see if I did nothing would I qualify for hospice (at least they would treat the pain). Of course I don't I'm still working. I'm just miserable right now and don't know what to do. I just want to feel like my energetic little on the high strung side self. I hate the pain I'm having now but I also did not like the meds I was on before or the way they made me feel all the time. They are listed below I believe in my profile. Any suggestions would be appreciated and honestly I don't think I'm on a pitty pot I just want to feel normal! Thanks for letting me get this off my chest.
Diagnosed 4/07 with Crohn's after hospital stay. Meds: Asacol, Librax, Azathioprine, Prednisone, Prozac, Buspar, and Xanax and percocet PRN.

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