Hello. I am 25 years old, female from CA. I have been diagnosed with Crohn's disease a year ago. I have suffered symptoms since I was a teen but was advised to see a Gastro-doc to confirm that it wasn't just IBS. Turns out from my colonoscopy I have moderate Crohn's and IBS. Recent tests have shown constriction of the ileum where the small intestine meet with the large intestine. And not too far from that, a small fistule forming. The constricition would explain the severe cramping I get from flare-up attacks. I have been on Pentasa and currently on entocort and 6-mp (mercaptopurine). Bowel movements range from 2-6 times a day, depending on when I have an attack. I have moments where I feel fine and symptom free, then I can be sick for a week or even just one day!! I hate missing school (college getting an associates deg.) and work! I feel so bad calling out "I'm sick, I feel very ill, I might have to go to the hospital". Thank God I have a job where my friend is the boss and understands.
I have had 2 hospital visits in less than a year. New job for 4 months and have called out 7 days possibly more already. My doctor has given me the option of either doing another colonoscopy and going to the ileum and insert a baloon in the opening, then inject steroids to dilate it. He doesn't know if it's just scar tissue (would make that procedure pointless) or if its the Crohn's attacking that area and it could help it. It's not a long term thing. Could open it up for about a few weeks, a month, or even a year.
Other option is surgery to remove and rettach the section which could help for a longer time. But I have no idea how long recovery is for that or how painful it would be. Does anyone have more of an idea of what would be best? Should I just wait it out and see if the meds could help? If it's just scar tissue, meds won't do a thing. My flare-ups are very inconsistent. I could be healthy for a while, or be very sick soon. I still need to talk to my doctor but he seems confused as much as I am. Maybe get a new doc? lol. But he's very nice and I can tell him a lot without feeling very uncomfortable. Thanks for your help and advice.
Sincerely, Jovae (Crohn's hater) =)