Cleveland Clinic ???

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Regular Member

Date Joined Jun 2003
Total Posts : 418
   Posted 4/29/2008 7:30 AM (GMT -7)   
Hi all,
I haven't been on in awhile.  I was busy feeling remission (Remicade induced) and loving life.  I went off Remicade to have our third child.  I had a great pregnancy and delivered a healthy baby boy.  about a month after the baby was born Crohn's returned with a bang!  Worse than ever before.  I began Remicade again every 8 weeks.  Four 'cades later, I still feel bad.  I also take Entocort EC and Prilosec to no avail.  Last Friday I could barely get the infusion b/c of the D.  I do still go to work every day and am able to take care of my children.  But it is very hard in this condition.  My doctor had said I should consider taking Humira if the Remicade isn't working for me.  That seems logical to me.
My boss wants to send me to be evaluated at the Cleveland Clinic.  He thinks they can figure something out for me.  I'm not sure they can do anything different for me.  What do you all think?

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 4/29/2008 8:02 AM (GMT -7)   
If I had the option of going to the CC, I certainly would go. A second opinion never hurts, and sometimes helps!

Regular Member

Date Joined Oct 2006
Total Posts : 317
   Posted 4/29/2008 12:36 PM (GMT -7)   


I don't have Crohn's but my husband does and takes Remi.  We were told that if he went off Remi for a few months that it wouldn't work anymore because antibodies are built up to fight it off.  I'm surpised your GI didn't know this. 

Regular Member

Date Joined Aug 2007
Total Posts : 349
   Posted 4/29/2008 12:38 PM (GMT -7)   
Ive been going to the doctor for about 4 months. Since going I have gotten more questions answered and had more done then any other doctor. My doctor is I would recommend them to anyone.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (23 years old 180lbs). On prednisone and will be starting Tysabri Soon.

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