Joint Pain/Drug side effects

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Date Joined May 2007
Total Posts : 1488
   Posted 4/30/2008 9:16 PM (GMT -7)   
I'm testing a therory this month.  I've had marked increased joint pain in my hands, wrists, neck, shoulders, knees and ankles since beginning Boniva 3 months ago.  I am now at the point of eating percocet 24/7 just to function.  This is in addition to my Humira weekly I might add.
Boniva is a drug that falls into a class of bio-phosphates.  Fosamax also falls into this group along with a few others which I am not familar with the "brand" names.  This class of drugs are suppose to increase bone density.
After reading a bunch of patient reviews and a FDA alert dated Jan. 7, 2008, I have found that the majority of patients have had my experience and the FDA alert backs this up complete with narcotic pain relief for most.
I'm about 2 months post prednisone withdrawal and my GI symptoms are under control.  I do have my first Rhemy visit scheduled for later this month to rule out any connective tissue disease/arthritis.
So back to my test....I'm just not going to take it this month and see what happens.  By the time I see the Rheumy it will have been 8 weeks from my last dose.
Just thought I'd share this for those of you with CD/Joint Pain/Low Bone Density.
Gail- Go for the Humira for maintenance.  It saved my grits when nothing else would!  I also have never developed a fissure or fistula.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.

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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/1/2008 8:43 AM (GMT -7)   

I saw on the news that there is some investigation with the Fosamax???? Not sure what the problem is . . . but you might want to give it a Google in case both meds are involved.

Sorry you are having joint issues . . . oughhh!! I hope you'll keep us posted about the cause.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

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Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 5/1/2008 4:58 PM (GMT -7)   
Hi Broom I was ready to call on my gorilla's to find you. You think I should go the Hum? I gotta tell you I been having pains all over and I am on no meds. I stand up and can hardly walk for a few minutes. My shoulders ache and can have aches in neck or anywhere else my body decides to pain. Might go under the sheets for awhile .Goining to grab the water bottle and hit the sweat room before long. I am not sure if this is a sideeffect of going off the pred. ,do you know anyone else that has had this after going off pred.? It's been 3 weeks. See your having some problems now too, and bet you got your monkey's chewed to the bone by now. Iam about ready to chew the hide off one or two. Hope your arith. visit goes good. Went to the eye DR. need to go back in a month because I did not take a driver.I should of showed up with my tool box a thought for my next visit anyway. More blood sucked out today I figure they got the fridge about one quarter full by now. lol gail

Veteran Member

Date Joined Feb 2003
Total Posts : 1441
   Posted 5/1/2008 9:09 PM (GMT -7)   
Could it be possible you are suffering from fibromyalgia? Those are all the trigger points. Talk to your Rheumy about the possibility.
I have arthritis from CD and had developed osteoporosis from long term steriod use. I started on fossomax and then later my doctor suggested Actonel when it first came out.
2 years after my 1st bone density test (dx. w/osteoporosis) the results showed no improvement. 2 years later my test results came back, slight improvement. 2 years later my bone density came back no osteoporosis!!!!!! :o)
I'm also on Remicade and methotrexate and 2 weeks prior to my Remicade treatment I can feel the arthritis sneeking in.
Remicade & Methotrexate have really helped me with my arthritis.
Diagnosed Bipolar - August 2004
     Crohns disease - 1995 
Arthritis & Fibromyalgia 
Leo Buscaglia

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