Feeling Overwhelmed

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New Member

Date Joined May 2008
Total Posts : 6
   Posted 5/1/2008 7:06 PM (GMT -7)   
I am new to the forum, but was diagnosed with Crohn's about 3 years ago. I have a few other autoimmune illnesses as well.  I am unable to take steroids due to negative effect on my liver and had an allergic reaction to Remicade after 4 infusions.  I recently started Humira injections.  I was fine after the first four shots, but after the second two I have had a red, swollen circle the size of a doorknob, which also itches.  I haven't felt much sicker, although the first day of the shot I did have a little dizziness, nausea and fatigue, although that happens a lot anyway, as you probably know.  I'm afraid I won't be able to take the Humira and am feeling hopeless again. I am very discouraged and wondered if anyone else had this and found a solution or knows of another treatment. I will see my doctor tomorrow about the sight reaction.   I have been unable to work for years and am very worried about my future. Any other treatments around? i've tried diet adjustments of all kinds Sorry for this long post, but I really needed to talk to someone who might understand. I hope you are doing well. Thanks for reading this.

Post Edited (hope4now) : 5/1/2008 8:09:55 PM (GMT-6)

Cookie's Wife
Regular Member

Date Joined Aug 2005
Total Posts : 299
   Posted 5/1/2008 7:26 PM (GMT -7)   
Hi!  I'm feeling the same way you are.  I'm also on Humira and I having more bad then good days.  It's so hard to be positive when this disease is with you EVERYDAY.  Just try to be patient with the Humira.  My GI said that it can take 3+ months to see the difference.  As for the welt... It's never happened to me but others here have had that.  I think it's a common side effect.  Talk everything over with your GI and hopefully they'll have some positive answers for you!  Best of luck and keep us posted!

If God brings you to it, He will bring you through it

New Member

Date Joined May 2008
Total Posts : 6
   Posted 5/1/2008 7:28 PM (GMT -7)   
Thank you for the kind response. It really does feel better just knowing someone understands. I hope that you (and everyone else) are feeling better very soon. God bless you.

Ne Ne
Regular Member

Date Joined Apr 2008
Total Posts : 243
   Posted 5/1/2008 7:54 PM (GMT -7)   
Hope Hi I'm new to all of this to at times I feel so overwhelmed by all that goes along with crohn's .....The pain, the diarrhea, and all the drugs.... I started the humira in Feb and I'm just now getting relief from it. Just try to stick it out, and always remember you can come here fro support... I'm so glad I found this place.... Were all walking in your shoes, and her your not alone..... As I've found out there are great people who know how you feel..... so keep posting..

Ne Ne

49 female dx June 07 crohn's had IBS for 6 years before take asacol 2x3 day,entocort 1x2 day, lotrel for HBP, omeprazole for stomach, potassium,one a day crohn's & colitis therapy,calcium & Vit D, lomotil for lose stools, tramadol for pain, humira

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 5/1/2008 9:19 PM (GMT -7)   
Hope4now -- you don't mention if you've tried the immune suppressors like azathioprene (Imuran), 6-MP or Methotrexate (MTX). There is also Cimzia and Tysabri which have recently been approved for Crohn's. Both come with warnings, but so do Remicade and Humira.

Don't get down on yourself for feeling overwhelmed though! This disease takes all it can. Just stay strong and know you are not alone!
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl

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