My husband (who has had a very difficult course with c-diff and crohn's) is now home, and starting to get slowly better. He's now having mushy stools, and is tolerating a low-residue diet, and is slowly starting to get his strength back (he lost 35 lbs in the past 2 months). Anyway, he's now on remicade (he's still in the induction phase, and is due for his 3rd infusion on May 22), and on 80mgs of prednisone, plus asacol, colestid and flagyl and vancomycin for the c-diff infection.
My question is about remicade - for those of you on remicade, do you get flare ups? If you do have a flare up on remicade, does that mean remicade is not working for you? I don't know if I'm phrasing this correctly.
1.) If you are on a maintenance dose of remicade (every 8 weeks infusion), have you experienced a flare-up?
2.) If you do experience a flare-up while on a maintenance dose of remicade, does it mean remicade is losing it's effectiveness? Is this when you start moving doses closer (like every 6 weeks), or double dosing?
3.) If you do experience a flare on remicade, do you take steroids to try and help?
My husband seems to be recovering ever so slowly. His diet now consists of low-residue foods (vanilla ensure, pedialyte, chicken, hamburger patties, SCD yogurt, plain pasta, plain white bagels, eggs). He does seem to be slowly gaining his strength back, and his stools are thicket - if you know about the Bristol Stool Scale, he's having type 6 stools, rather than type 7 diarrhea. Before coming home, the doctor did a colonoscopy and found that his inflammation is about 40-50% better than before. So there's some improvement. I just want to know what to expect on remicade - is it supposed to keep you in remission as long as you're taking it, or is it supposed to be something you take along with pred as needed to fight flare ups?
Thanks for your help and clarification.
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff
Currently in hospital for past month
Canasa, Lialda, Vancomycin, Colestipol, Elavil, IV Solumedrol 120mgs, Remicade (1st infusion April 10, 2008), FloraQ, FloraStor, Morphine Time release for pain